Jmartes71
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Latest Celiac Disease News & Research:
Everything posted by Jmartes71
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Im sorry I didn't read until just now, thankyou.its pretty scary because again as I keep stating down played because of what im currently going through and validated by you guys, thank you very much for that because this is mentally challenging especially when asking, begging for medical help.In that note, I looked at my next appointment with gi whose my...
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Thankyou very much.Our city will be holding a town meeting Tuesday and I really HATE speaking in public but im going to attempt to go and discuss celiac any heads ups?
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I haven't been up to date with taking my vitamins these past few months since I've been dealing with blood work and things that don't want you to have vitamins for imaging and mri's , scans.Im getting confused so I'm just not taking it to not disrupt the tests.My skin has issues.Im dealing with burning sibo pain .Im being extremely sensitive at my age my...
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Ive noticed in my medical records that my keytones have always been note right. Never discussed but considering I'm going through my ailments that aren't picking up by gluten because I've been been glutenfree since 1994 with other food allergies.I did Google keytones and they talk about fatty tissues etc, I didn't read it just enough to see if I needed a...
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Thankyou I did reach out to a dietitian from this website and since popular there's a bit of a wait at first, My appointment I believe is in June on zoom.Going in to see pcp about medication im having a reaction from, told neurologist and she said its a common affect so need to ck and see if thsts through case this afternoon. This nightmare could easily been...
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- autoimmune disease
- celiac disease
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So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
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I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that...
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Well with all my fighting last year waisting my time " schooling" about celiac disease and scrambling to find a careteam and talk about other issues that are affecting me, I was able to discuss my headache, nerve issues eye sensitivity ect.Got lots of mri' s done with the last month and just found out i have MS! All because celiac was downplayed, ignored...
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- autoimmune disease
- celiac disease
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I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
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Medications
Jmartes71 replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this. -
After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive...
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I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...
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I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY
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I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
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Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
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I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten...
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Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...
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Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the...
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Oh great.As Im battling for help with my relaxed celiac that is giving me health issues though not consuming.gluten-free since 1994.I had second brain scan this past Saturday. Also when I say I gave been diagnosed by biopsy in 1994 it still doesn't matter because it didn't come from that doctor.Im scared because my health is slowly becoming worse and its...
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I tried but considering not with press and I put self.I didn't get an invite on the cdc.Also I went in yesterday for mri head scan considering I get headache, migraine but I know the triggers smell of nasty poison ( wheat) i got a thing back because there's a finding but non specific. In my heart I know its because im still healing from being a bus driver...
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I saw Newsom is holding conference with cdc and news conference can join ect.I put my name and who im with self since not with media. I do want the celiac circus to stop with patients. I found on news watch
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Shingles - Could It Be Related to Gluten/ Celiac
Jmartes71 replied to Ginger38's topic in Related Issues & Disorders
Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
