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Lymphocytic Colitis...not Celiac?

Chelle15

By Chelle15
in Related Issues & Disorders

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Chelle15 Apprentice
Chelle15
Posted

Well I have a follow up appt with my doctor in 2 weeks. Based on a biopsy apparently taken from my colon, there is lymphocytosis and that probably means I have lymphocytic Colitis, I guess. Anyone have any experience with this? It says it mainly causes diarhea, but before the last 2 months I have struggled with constipation. I am so confused.

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mle-ii Explorer
mle-ii
Posted

Yep, I have been diagnosed with Lymphycytic Colitis as well. Did they give you an official diagnosis?

As far as mainly diarrhea, yes, but I too suffer with with constipation at times as well. My constipation is very similar to the symptoms of Proctitis. In the past I had lots of problems with diarrhea as well, but after stumbling upon finding Atkins to limit my symptoms (um no or very little gluten) I found I was gluten sensitive.

If you come to find that you have LC (Microscopic Colitis which also includes CC) there is a great support forum found here:

Open Original Shared Link

One interesting thing is that I have the gene for celiac and gluten sensitivity, though none of my tests have shown Celiac. I've found my symptoms to improve by removing gluten and other food intolerances. Which you would find the majority of folks on the support site to have found as well, gluten seems to be a common problem. Other folks there also suffer with constipation. Oh and I'm a 37 yo male, LC/CC/MC is commonly associated with woman over the age of 60 which really puts me out of the likely candidates for this disease.

I have many theories with the connection, all unproven of course. :)

If you have any questions, please ask away.

Thanks,

Mike

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Guest Norah022
Guest Norah022
Posted

I got diagnosed with lymphocytic colitis through a biopsy...ended up the symptoms i was experienced which leadthem to do the biopsy were because of my gallbladder.

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mle-ii Explorer
mle-ii
Posted
I got diagnosed with lymphocytic colitis through a biopsy...ended up the symptoms i was experienced which leadthem to do the biopsy were because of my gallbladder.

Did they find anything wrong with your gallbladder?

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Chelle15 Apprentice
Chelle15
  • Author
Posted

Thank you so much for your reply. I am just so stumped. I have not had a diagnosis, just the possibility based on MILD lymphocytosis of my colon. No sign of Celiac, everything else looked normal. I have an appt. in two weeks. My blood work had high gliadin IgA and IgG, but nothing else was positive, so the GI said he did not think it was celiac, but I still don't understand what these antibodies were doing there. I just want to know something, you know?

You were diagnosed with CC/LC/MC? Did they do anything for it? It just makes me wonder if it is like a precurser for celiac.

My abdomen gets so swollen and my body aches all over. I just wonder if it is all related or not. I can only imagine what the doc will say. I am just so used to hearing, nothing is wrong or its IBS, which I now believe to be a symptom and not a diagnosis.

Again, THANK YOU!

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Guest Norah022
Guest Norah022
Posted
Did they find anything wrong with your gallbladder?

OH yeah they took it out..said it was the ugliest gallbladder they had ever seen. It basically stopped functioning.

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mle-ii Explorer
mle-ii
Posted
Thank you so much for your reply. I am just so stumped. I have not had a diagnosis, just the possibility based on MILD lymphocytosis of my colon. No sign of Celiac, everything else looked normal. I have an appt. in two weeks. My blood work had high gliadin IgA and IgG, but nothing else was positive, so the GI said he did not think it was celiac, but I still don't understand what these antibodies were doing there. I just want to know something, you know?

You were diagnosed with CC/LC/MC? Did they do anything for it? It just makes me wonder if it is like a precurser for celiac.

My abdomen gets so swollen and my body aches all over. I just wonder if it is all related or not. I can only imagine what the doc will say. I am just so used to hearing, nothing is wrong or its IBS, which I now believe to be a symptom and not a diagnosis.

Again, THANK YOU!

Hey no problem. I'm stumped as well. It sounds like you do have LC, but I'm not a Dr (I only play one on TV ;) ). I was told I have a MILD (ha ha) case of LC, and well in comparison to other folks with MC (LC/CC) I do have it mild I suppose. Still affects me negatively. I do find it quite telling that you show IgA and IgG for gliadin (I did as well in stool tests from Enterolab), regardless, I'm betting that elimination of gluten is definetly going to help aleviate some of the symptoms.

Indeed, quite a few of us with MC want to know something. This disease is very rare (according to the Drs) and they don't know the cause or how to treat it. At least to my knowlege. Like I said I have some theroies, but who knows which ones or even if they are true.

Yes, I was diagnosed with Lymphocytic Colitis, which is a version of Microscopic Colitis. CC is another version. Drs have some things to help, but it seems they are just bumping around in the dark. Some folks have been helped by steriods, others by anti inflamitories (not NSAIDs!!! they think this is one of the causes) and still others by diet only some with supplements.

Yes, one of my thoughts is that this could be a precursor to Celiac, could be related some how to Celiac, or even a different version of Celiac. Me having the genes for celaic along with the antibodies in the stool makes me think it's related somehow.

The biggest symptoms for me now and in the past is diarrhea (not so much now), proctitis/tenesmus (bascially the feeling of having to go and not being able to or passing little stool, inflamation, pain), flu like symptoms (achy, brain fog, pain, head ache, nasuous, lack of energy, poor balance), and intense stabbing pain about 3 or so inches just below my belly button (literally feels like a knife stabbing/twisting around in that area).

Here's some info on proctitis/tenesmus:

Open Original Shared Link

Yeah, IBS is the junk drawer of GI diseases, they can't figure it out so they say IBS or it's in your head. :(

Like I said, if you Dr comes back with the diagnosis of LC, please take a look at the support forum I linked earlier. They are a great group of folks all with this disease and they can be a great resource. This forum is a great resource as well since it seems that gluten is an issue for us as well.

HTH,

Mike

OH yeah they took it out..said it was the ugliest gallbladder they had ever seen. It basically stopped functioning.

Ok, silly question, but did they say why it stopped functioning?

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