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Milwaukee Doctor?


Pam

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Pam Newbie

Does anyone know of a good GI doctor in the Greater Milwaukee area who listens?


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fraggle Newbie

Hi there,

I live in Canada/ Any other Canadians out there who had a tough time getting a diagnosis?

for 7 years after a car accident where I was pregnant and didn't know it I had horrible pain after I ate and sacroillitis. I was told I had IBS. I had a biopsy and enderoscopy because the gastroenterologist suggested poss. Chrohns. The biopsy came up negative for celiac disease but he said he couldn't see alot in the intestine due to so much inflammation. That was 7 years ago. After that I met a woman who said maybe you are allergic to gluten. I said "what is that?" she explained to me and took me to the health food store. I started a gluten free diet and became much better after about 5 months. Once I got better I began eating normally again. and had constant diarrhea. Embarrassingly one day I didn't make it to the bathroom and had diarrhea in my pants in front of my new husband and new children 10 and 11 (the kids thought it was funny). I had migraines every day, I went to my doctor and she said well a long time ago you were told you had IBS and she put me on the pills for IBs. They didn't help and I told her I think I am a celiac and went on a gluten free diet. My doctor gave me the blood test a month after I was gluten free and it came back negative. I could not go on a diet of gluten again for testing so I went to enterolab and my tests came back positive for gluten intolerent and dairy intolerant. I went to my first celiac meeting on Sunday and it was a gluten free potluck and delicious. The regional manager said the US tests tend to be more reliable and that some people who are positive on a biopsy test negative on the blood test and also some specialist don't know how to read a biopsy properly.

I suggest Save yourself a lot of time and havoc and go through enterolab. If you can afford it.

7 years later I finally have something in writing and have a gene also that makes a person gluten intolerant.

  • 3 months later...
chaessly Newbie

I have a great doctor, but he is in Park Ridge, IL, which is about an hour south of Milwaukee. His name is Jeffrey Goldman, and he is affiliated with Lutheran General Hospital. He is absolutely wonderful, listens very well, and just has incredible bedside mannerisms. When I go see him, he sits down with me, and he lets me ask all of my questions, and just lets me vent, or talk as needed. He never makes me feel rushed, or like my questions are stupid or unimportant. So though he is a bit of a drive, I highly recommend him, and have had wonderful results since starting to see him nearly three years ago.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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