Hello, so back when I was a senior in high school (2020) I had about 8 months where I was completely unable to function, I was vomiting, lost over 20 pounds, had diarrhea and was really sick. This happened after I was hospitalized with cat scratch fever and cytomegalovirus. I have family members on both sides of my family with celiac and they told me my symptoms align really closely with what they experienced. I decided to cut out gluten and go gluten free.  It really helped, I was nearly normal again by 6 months. By the time I could finally see a doctor in person again I was already strictly gluten free for over a year. This doctor ran the blood tests, told me they were negative and that I just...

Hi all! Ive been away for a while navigating this new illness and also studying at university. But im back with so more updates and info, thank you all for your help and support.    Update: I suffered with an infection of my dermatitis herpetiformis a month or so ago. This resulted in a trip to a&e with an extremely swollen face, and a 2 week dose of doxycycline. Of course the infection went down but my dermatitis herpetiformis still remains to pop up every now and again. However, I’m coming up to almost a year being gluten free and I can honestly say the outbreaks are less often and more mild. But I’ve been eating extremely strict on a gluten-free diet (not much eating out and very cross...

Hi there! This is something I’ve often wondered too! I’m still going through the process of getting an official dermatitis herpetiformis diagnosis, however I’ve been battling for 3 years and the dermatologists are pretty certain it’s dermatitis herpetiformis/celiac disease with it’s classic appearance and symptoms (it’s nasty stuff!) About 2 years ago before dermatitis herpetiformis was on the cards, I suffered with a terrible episode of seb dermatitis, it was absolutely everywhere and was probs left undiagnosed for months before I could get in with a dermatologist! I used ketaconazole and it seemed to do the trick. However, knowing what we do now, the dermatitis herpetiformis was...