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When A Gluten-Free Diet Just Isn't Enough

Discuss what to do when a gluten-free diet just isn't enough, including persistent symptoms, hidden gluten, cross-contamination, food intolerances, leaky gut, super sensitivity, nutritional concerns, and related health issues. This forum section helps members share experiences, ask questions, and explore possible reasons for ongoing problems while working with healthcare providers and maintaining a safe gluten-free lifestyle.

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  1. Food Intolerance & Leaky Gut

    Discuss food intolerances, leaky gut, casein, soy, corn, eggs, FODMAPs, elimination diets, digestive symptoms, and additional dietary issues beyond gluten-free living.

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    • Rory Bokser
    • Tracking food triggers with elimination diets — tried Tract app?
  2. Super Sensitive People

    Discuss personal experiences with very low levels of gluten exposure, cross-contamination concerns, persistent symptoms, and gluten sensitivity issues among highly sensitive individuals.

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    • nancydrewandtheceliacclue
    • Celiac flare years after diagnosis
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    • DanMc
      BuddhaBar, I came across this thread while searching online for celiac insomnia (having also scared myself stupid by finding out about fatal insomnia) and it did bring me some piece of mind as it so closely matches my own experience. I know this thread is old now, I hope you're doing well, and thanks for posting your experience.
    • cristiana
      That's great news, @HelloFlowersGoodbyeFlour.  And you might find that if you do have asthma, keeping your reflux under control may help, if my experience is anything to go by.  
    • trents
    • HelloFlowersGoodbyeFlour
      Quick update I ended going to a clinic they heard me wheezing and gave me a steroid shot I’m feeling much better now and I’m planing on getting reevaluated for asthma as the clinic doctor is thinking it might be that based on how I reacted to the steroid. But he couldn’t diagnose.  thanks again to everyone that applied (still seeing the gastrointestinal doctor too!) 
    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
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