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imhungry

By imhungry
in Coping with Celiac Disease

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imhungry Rookie
imhungry
Posted

Greetings,

New here, and new to gluten free and daity free living... I found out in July, after using the Detection Diet and eliminating wheat and by the second day I felt like a million bucks! Then later determined I have a dairy intolerance as well. Anyhoo, I am so glad to have found this forum. I have been reading anything I can get my hands on and try to be as stict as I possibly can be. Truthfully, I have had about 11 days straight feeling human again.

I am an RN, and so might comment on some posts from a medical standpoint. Have felt alone, frustrated and just plain hungry most days in the past. Finding the right food, has been a hassle living in central Wisconsin. And being in the heart of diaryland - you can guess how that can be an issue.

I have two children, and a loving husband who is about fed up with this, as he does not like to see me suffer and feels powerless to help. As you all know, sometimes the ingredients sneak up on you. You forget a particular chemical name and bam, you gut aches!

I am completely off of my Prilosec which was treating my GERD for about 11 years! Yikes! All stemmed from the gluten and dairy intolerance evidentally. I was looking to get surgery for my GERD in 2006. Scary!

Anyhow, wanted to introduce myself, and hope I can be of service. I also hope to not be so hungry so much, and to be able to get help for myself. Thanks for listening!

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shan Contributor
shan
Posted

HI, i am also new to this diet (although my daughter is gluten free and my daughter gluten, dairy and soya free) I always said to my hubby dd just doesn't know when she is full... but now that i am on it I AM STARVING!!! Seriously, i don't know your life style, but i am a stray at home mom - so i definately have a lot of advantages, being able to heat up my own lunch etc. I find breakfast the hardest - i usually make a cottage cheese or tuna salad for breakfast, or an omelate or something light, quick to make and filling. I make a big supper and heat up the leftovers for lunch the next day. I do not have any health food shops near me, and don't bake gluten free either - i use regular products from the shop and get around ok. If you want to know more, just answer!

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loco-ladi Contributor
loco-ladi
Posted

First I want to give you my warmest welcome, you have indeed found a great place to not only give but get lots of valuble information, look around a bit you are sure to find almost anything you can imagine.

I recently printed off a few recipes I am going to try out as my regular diet has seemed kind of "blah" lately and most of my expiriments have flopped, well except the personal pizza one anyways.

Please keep in mind each of us has their own set of diet guidlines, currently I am just gluten-free but am still limiting my dairy to occationally, dont want to get to far ahead of my body, lol

also please feel free to ask any questions you can think of, while we may not be dr's and nurses we do have eons of valuble life expirience!

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Offthegrid Explorer
Offthegrid
Posted

Welcome, welcome, welcome! I am gluten- and casein-free and working on being soy-free, but that one keeps sneaking in there on me.

My other half oscilates between being a super understanding totally wonderful guy to sometimes being insensitive. They have to go through an adjustment, too. Try not to let anything get in your way, but also let them be OK and not have to be afraid of stepping into the kitchen. You're both learning, and you'll get this.

It's now to the point that my hubby knows what is gluten-free and isn't. In turn for him making me gluten-free dinners, I make him some delicious desserts, sometimes with gluten, for him to keep his sanity.

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imhungry Rookie
imhungry
  • Author
Posted

Thank you for the nice welcome. I am sittin ghere this evening having a heck of a time. Only thing I can figure is the tea I drank which I could feel the reaction coming on this AM, and then the Chiclets I had this afternoon. Bad bad feeling, as you all know.

For the record, I honor personal life experience, and respect anything you can all share.

Fretting a bit about Turkey day as all are coming here, because I cannot risk them messing up the meal or contaminating something. I have found I am really senstivie to even crumbs, flour inthe air like in the bakery etc. So, we have no gluten flour in the house, so hubby can't make a mistake. Anyhow, having everyone here will put a lot of pressure on me because as you all know, things can look so good on paper and then taste so horrible. The basics should be covered though so noone will starve. :rolleyes:

It still stinks. It's just hard as you know.

Take care everyone. Hope your tummies make it through the holiday. :)

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loco-ladi Contributor
loco-ladi
Posted

Hope everything went well for you today as I know you were nervous!

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imhungry Rookie
imhungry
  • Author
Posted

Thanksgiving went GREAT! I could eat everything! And there were no complaints from the gluten eaters. Either they knew better, or it tasted alright to them too. It was a great relief and in fact I was still eating Thanksgiving as of Monday I was enjoying it SO much. I am so thankful for that. :D

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    • trents
      Waiting for urgent referral.

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    • Moodiefoodie
      Joint swelling when ill even on gluten-free diet

      By Moodiefoodie · Posted

      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

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      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
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