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C'smum

Is It Celiacs?

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Just need to know!My 2 yr old was blood tested for celiacs with a negative result.However she only ate Gluten for 8 weeks before test.Mother and other blood relatives have celiacs.Mother not convinced that test was accurate as symptoms were prestent and continued until I finally put her back on a gluten free diet.For the first year of her life I kept her gluten free-she had no problems now that she is back to gluten free she seems better except for some constipation.

Has anyone had the experience of being miss-diagnosed?

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I believe I've read that testing in children has a lot of false negatives.

The true test is in the diet.


Andrea

Enterolab positive results only June 06:
Me HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0301; Serologic equivalent: HLA-DQ 2,3 (subtype 2, 7)
Husband HLA-DQB1 Molecular analysis, Allele 1 0201; HLA-DQB1 Molecular analysis, Allele 2 0302; Serologic equivalent: HLA-DQ 2,3 (subtype 2,8)



The whole family has been soy free since February, gluten free since June 2006.

The whole family went back to a gluten diet October 2011.  We never had official testing done and I decided to give gluten a go again.  At this point I've decided to work on making some gluten free things again, though healthwise everyone seems to be fine.  The decision to add gluten back in was also made based on other things I'd read about the 2nd sequence of genes.  It is my belief that we had a gluten intolerance, but thanks to things I've learned here, I know more what to keep an eye on.  If you have a confirmed case of celiac, please don't go back to gluten, it's a lifelong lifestyle change.

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Just need to know!My 2 yr old was blood tested for celiacs with a negative result.However she only ate Gluten for 8 weeks before test.Mother and other blood relatives have celiacs.Mother not convinced that test was accurate as symptoms were prestent and continued until I finally put her back on a gluten free diet.For the first year of her life I kept her gluten free-she had no problems now that she is back to gluten free she seems better except for some constipation.

Has anyone had the experience of being miss-diagnosed?

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