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Additional Issues With Celiac Disease


lhceliac

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lhceliac Newbie

Has anyone had any trouble with additional allergies? It seems I can't take any medication now without having a hypersensitivity reaction or allergic reaction. I was curious if anyone else has had this issue?

Thanks

lhceliac


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Ursa Major Collaborator

How long have you been gluten-free? I was unable to take anything, including vitamins, for the first six months, until my intestines healed enough to tolerate them again.

Kritter Rookie

Funny you should mention this - I have developed (or maybe just discovered) some additional food allergies since going gluten-free. I now am allergic to nightshades (tomatos, peppers, egg plant, etc) Perhaps I was before, but I had so much going on and felt so bad all the time, that now that I'm feeling better, it's easier to notice something that gives me trouble? Could it be possible that you are starting to be more "in tune" with what gives you trouble now? Just a thought. I know it takes a while to heal, I'm axious to be "all better" RIGHT NOW! As it turns out, it's two steps forward, one step back. It all takes longer than we wish it would. Best of luck to you!

Kristin

YoloGx Rookie

Tell me about it! I am allergic to nearly all antibiotics except cephalexin, including sulpha drugs. I am very sensitive to drugs in general, always have been. Apparently as it turns out I have had celiac almost my entire life. With me it has always been that a little goes a long ways. I am allergic to aspirin--it gives me bruises. I can't handle most anti-histamines either; something to do with the pseudo-ephedrine. Quinine knocks me out, literally. Alcohol has long been a no no. I have to be very careful of pain killers and sedatives since I easily over react. This why I got into herbs so heavily.

I am also allergic to a whole host of other foods than just the wheat family: all nuts, sesame seeds and oil, all milk products except plain nonfat organic yogurt, lamb, tuna, goat and goats milk, carrots and the carrot family except for parsley, wintergreen (its related to aspirin after all!), chocolate and probably a few other things I can't remember right now. Sugar etc. isn't that great for me either due to yeast overgrowth problems. I don't like to obsess -- at this point I just have my habit of avoiding foods and ingredients that don't agree with me.

I believe this sensitivity has something to do with leaky gut syndrome -- though I often wonder if it isn't just a life long thing. At this point I just don't know however. I thought I was off all gluten for years but apparently wasn't avoiding trace glutens--which was bad enough to cause continued havoc. Am starting to feel a lot better now that I have recovered after being ill 2 months with bronchitis and a UTI -- after my first few experiences with violent reactions to CC-- I now am forearmed and forewarned and simply won't put myself at risk if I can at all help it.

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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