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Spunky007

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Spunky007 Apprentice

This thread [and forum] is incredible! I always thought I was so alone--either the only one struggling with gaining weight because of intolerances, or in the world of Celiac's, the only one who had to also fight to gain weight.

I haven't been officially diagnosed as Celiac, but after "digestion problems" took a severe downhill slide after graduating college, I've pursued close examination of my diet on my own. I used to just count calories and fight to eat 4000+ a day to gain weight. Suffice it to say this was miserable since instead of filling me up and making me gain weight like it would a normal person, it made me sick, irritable, and have no life outside the kitchen/bathroom.

I'm only at the very beginning of my journey to health-and LIFE-but after two weeks of finally getting hardcore about cutting out gluten, soy, and lactose [plus some other foods that seem to be triggers] I'm already seeing the improvements!

It's a rough road, even yet, as I still have confusing flareups for no reason, and almost anything I "put in" to my system riles things up. I still have trouble telling what could be a problem food vs. what is just plain tough to digest when my system is so messed up.

All of your posts encourage me that I DO have hope--even if I'm written off as the scrawny freak who just doesn't know how to eat by everyone around me.

I'll be looking around for some good ways to get more calories on a restricted diet and budget! Right now my "happy foods" are nuts and lactaid milk...but even those get old after a while.


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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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