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smitchell

Waiting On Results Have Some Questions

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Hi,

I just recently started on this. I am not sure whether I belong to this forum, but here I go.

My doctor has gone through my symptoms and suggested I may have Celiac. However, when referred to a gastroenterologist for a colonscopy (mother and grandfather both died colon ca) and endoscopy he and the nurse shrugged that I have celiac.

First being that I am overweight and don't have diarrhea.

I am 37 and have had severe joint pain (wrists, ankles, knees, chest)

thyroditis

gas all the time (hold it in and become bloated)

constipation on and off

brain fog (attributed to two kids under 2)

extremely fatigue

forever hungry and live on carbs

80 lbs overweight

vitamin d deficiency

feeling depressed

Here is my question. I did the endoscopy and colonscopy (which is fasting) would that deter results, since I had nothing in my stomach? I did not have the blood test. Also, since my fast I have felt great. So, now I am convinced there is some association.

I felt so disregarded by the dr and nurse that I feel at a loss. Should I take another route? Look for something else. Does anyone have these symptoms.

I am still waiting on results of the endoscopy, but I am terrified to eat any carbs or anything with the gluten for fear the pain will come back.

Thanks.

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You do sound like one of us. Doctors have been taught in this country that celiac is rare, it isn't. The fact that you don't have D isn't proof that you don't have celiac. Many of us have C for a while before we get constant D. If your body isn't absorbing nutrients from food it is going to try and hang on to everything as long as it can and it will also keep signaling that you are hungry. You certainly wouldn't be the first to gain weight in the earlier stages. I hope you were still eating gluten when the endo and biopsies were done, they have a chance of a false negative even when on a full gluten diet. In the end your body is going to tell you the answer, IMHO. Since your done with testing go onto the diet and then if you still have doubt do a gluten challenge.

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Thanks for the response. I didn't think this message posted. It is very helpful, especially reading your misdiagnosis for so long.

You do sound like one of us. Doctors have been taught in this country that celiac is rare, it isn't. The fact that you don't have D isn't proof that you don't have celiac. Many of us have C for a while before we get constant D. If your body isn't absorbing nutrients from food it is going to try and hang on to everything as long as it can and it will also keep signaling that you are hungry. You certainly wouldn't be the first to gain weight in the earlier stages. I hope you were still eating gluten when the endo and biopsies were done, they have a chance of a false negative even when on a full gluten diet. In the end your body is going to tell you the answer, IMHO. Since your done with testing go onto the diet and then if you still have doubt do a gluten challenge.

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I'm overweight too and my dr gave me the same look you described. Many of us are overwieght rather than under. This disease is personalized and different for each individual. Some dr's have a hard time with that. They like things show nice and classic symptoms. Don't worry about it, if the diet agrees with you, that's all you need to know.

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