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2 Year Old With Negative Test-Still Celiacs?

Myooshka

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Myooshka Apprentice
Myooshka
Posted

If anyone could give me some advice from personal experience that would be great. I have two sisters that are most likely celiac but not diagnosed yet and two nephews that are celiac. My son was constipated from birth and removing milk from his diet fixed that problem. After that he started to experience crumbly, sand like stool on and off so we tested him for celiac which was negative. That is actually how I found this forum was googling "crumbly sandy poop".

We put off his pooping issues to teething. Now all of his teeth are in and the last few weeks he has had a lot of these crumbly type poops with diarrhea and a lot of gas. We tested him again for celiac and again negative. His stool has always had an off smell to it as well.Doctors always blame it in teething or something else. We are seeing a pediatrician in a couple weeks. Our faith in doctors is an an all time low with our experiences and experiences of family and friends. Has anyone had their child experience symptoms of celiac,test negative for it and then eventually test positive? Can you have Celiac and test negative for it? If so is there another test that will show it if the standard test is negative? If so can you please let me know the name of the test. Also our local Celiac chapter endorses the home test and this is what we have tested our two year old son with. Does anyone have any experience with this test. Any other comments or suggestions? Otherwise our son has been very healthy, growing normally, although if the runs and constant pooping keeps up the way it has been the last few weeks I am concerned it could effect his weight gain.

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ravenwoodglass Mentor
ravenwoodglass
Posted

False negatives are not uncommon especially in children under the age of 4. You could try Enterolab stool testing. They test stool and the testing is done by you sending in a sample. You could also try the diet and see if it helps.

Lisa Mentor
Lisa
Posted

Yes, I would also suggest that you try the diet for a couple of months. But it is important that you be 100% diligent with the diet. This place can be very helpful to you. With your strong family history, it would make sense that gluten may be an issue.

As mentioned, testing for children under the age of five is highly unreliable.

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