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Finally!

"Brain Damage" - Brain Fog, Memory Loss, Etc.

Gluten vs. Brain   

9 members have voted

  1. 1. How was your brain affected?

    • "Brain fog"
    • General memory loss
    • Insomnia

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      Depression
    • Speech / Language affected
    • Migraines
    • Other problems (see my reply)
    • Edited to add: Balance problems
    • Edited to add: Ataxia (coordination problems)
  2. 2. Has your speech / language changed? How about math?

    • Started forgetting names of people, streets, cities
    • Would search for a word and never find it
    • Mistakes in very basic grammar when speaking (ie., "she have", "you was", etc.)
      0
    • Random word slips (e.g. "She lost" instead of "She looked")
    • Switching around letters when writing, sounds and syllables when talking
    • Basic quick math got complicated all of a sudden
    • More complex math or logic concepts became harder to grasp
    • Problems with figuring out mechanical solutions (for example, in things like house improvement, car repair, appliance manuals, etc.)
    • Other problems (see my reply)
      0
  3. 3. Any other strange effects?

    • My sense of smell was damaged
    • One of my eyes would not work properly once in a while
    • The perception of hot and cold is out of sync
    • Other problems (see my reply)
    • Edited to add: Hearing issues (keep asking "What did he just say?", "What did she say?")


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Now that I have the celiac diagnosis, the puzzle starts to click together. Many symptoms that bothered me start to make sense now. I used to feel like a candidate for an early Alzheimer's mentally, and like a future MS diagnosis physically, and I would just tell myself I needed to stop being such a hypochondriac. Then things got worse. You know, the "I told you I was sick!" writing on a gravestone type of worse. :) And now I understand why I was feeling so awful for so long.

But I still think, maybe I was imagining things?

So I thought I should ask here and get a reality check. Let's see what is really going on.

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Me to. In additon to the issues I checked I also had ataxia, problems with balance. I know what you mean about dementia, I had times when I would forget where my keys went into the car. I couldn't tell someone to bring me anything as simple as a fork and know that word would come out of my mouth. There was a lot of pointing and 'thingys' back then. I have improved a great deal but do still have problems at times with getting words out. It's like reading from a script with half the words blanked out.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You need to look into vitamin B12 defiency from Celiac and/or Pernicious Anemia.

Lucky, today the sublingual B12 vitamins are thought to be as effective as the shots.

Yep, I'm B-12ing myself for sure! But it's truly amazing how much damage it can do.

PS. I can't see this topic in the forums - does it mean it has to be pinned to appear?

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