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kellykay

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kellykay Rookie
kellykay
Posted

Hi there... well I have known for many yrs that I am sensitive to wheat..but have lived in denial about it...

I recently went to the sjogrens society of canadas patient conference and there was alot of talk about the connection btwn Sjogrens and Celiac.. well I have Sjogrens ...and a very long history of GI problems... I used to complain about it all the time.. and any time I have ended up in the ER it was because of abdominal pain and severe constipation or Diarrhea.. I have always got the old.. you have irritable bowel...

Lately I have had a really awful time with my "stomach issues" as we call them. I have osteopenia at 45... vit d deficiency and a history of iron deficiency.. I am goin to go to my allergist and ask her to test for me Celiacs.. I haven't had any gluten in the last day... will being off it a couple of days make a difference in the antibody test... I feel so awful I am afaird to eat much of anything.. and feeling better right now seems more important...but I would like to know if its an issue....

thanks

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WheatChef Apprentice
WheatChef
Posted

Welcome and best of luck with your next doctor's appointment.

Check out some of the other threads on this forum asking for which specific tests to ask for, it seems like a very significant portion of docs are idiots in regards to this sort of condition set and most will not give you all the necessary tests cause they're working off of severely outdated information.

From your symptoms it definitely sounds like you are at quite a high risk for being gluten sensitive. If you're only really at less than a week off of gluten I'd personally suggest you stay on gluten products till you see your allergist. Every day you're off gluten the tests become slightly less reliable to different degrees and while a few days won't have a major effect on it, staying on your regular diet for just a few more days shouldn't be a severe problem for you.

kellykay Rookie
kellykay
Posted
  • Author

Thanks for the reply.. I did eat gluten yesterday.. and paying for it this morning... I called the drs and am goin to have the test this week.... so lets see what happens

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      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Iron loss and potential celiac.

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      - ThomasA55 replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Iron loss and potential celiac.

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    3. trents
      - trents replied to ThomasA55's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

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      Iron loss and potential celiac.

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint...
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    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

      Does my iron loss sound like celiac to you?
    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
      Iron loss and potential celiac.

      By ThomasA55 · Posted

    • trents
      Iron loss and potential celiac.

      By trents · Posted

      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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