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acidum

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acidum Newbie

Hello,

i would like to make this as simple as possible so i will try to make chapters short:

I have been struggling with many symptoms since the begining of my existence. When i was a child most of them were:

- stomach pain (down-left side), very painful always end with diarrhea

- unknown migrains

- social anxiety / avpd

- allergic reactions to unknown cause (5cm bump/tumors on skin hand/legs mostly, very painful typically lasted for 7 days)

As time went by (i've turned 15) allergic reaction symptom disappeard or was exchanged for chronic bronchitis and runny nose also of unknown cause - mostly treated with antibiotic but they haven't worked for long term. Anyway i had myself tested for allergens. It turned out im allergic to grass, dust, dogs, smoke etc. After taking some medications for it the bronchitis/runny nose kinda disappeard. However i still had stomach pains and migrains.

About two years after that i started to develop acne resistant every possible drug. Acne was located only on the face. I had tested the pus in private laboratory it turned out there is no harmful bacteria there (tested in 3 different labs, 3 different years). I decided to took accutane course and back in the days i didnt know how foolish i was. Accutane haven't helped instead it made things worse, red face, hairloss bla bla and acne (even worse) was still there (painful and itchy at the same time).

Next year i had a gastroscopy but without biopsy. Well it turned out that i have stomach ulcers. Hurray for me!

I took zoloft, prozac and some other things - no effect really.

Anyway i was feeling more and more down. Always tired, depressed and with brain fog. I have decided to make a biopsy of the gut (since my poo was yellow), actually doctor said there is no need but i insisted. It turned out i have malabsorption syndrome, II stage in Marsh scale - cause unknown. So through reading on the internet i found it could be a celiac. So i have tested myself for antibodies in blood (i did it 3 times in 2 years) however they were all negative. Doctor said it is not celiac and since it is not and he has no clues whats the problem i should not visit him again. <--- urm

Oddly my blood results are and were normal (at least the one i've checked for), the only strange thing was B12 level (which was a bit low) but MVP was normal.

Well i though i will try gluten free diet. I'm on it for a month but i don't really see any difference. I still have stomach problems (same type as i was a child), migrains, i'm always tired and i feel like i'm 100 years old (but well i should be just 25).

Anyway any recommendations what to do next? Any ideas when the diet should work? Or this does not really sound like celiac?

thanks for any response and sorry for the bad language :(


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mommida Enthusiast

Everyone has a different rate for healing. It could take up to a year to see real improvement on a gluten free diet.

You should be taking some sublingual vitamin B12 supplements. The doctor should have given you the shot when you were given the results that said you were low. :rolleyes: I think you need to be seen by a GI specialist to find out why you are having malnourishment issues. Keep a food journal to rule out hidden gluten, other food intolerances ( a lot of people complain of runny nose and are relieved once the are casein free) ;)

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
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    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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