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L-NO

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L-NO Newbie

I just started reading about celiac yesterday because Im at my wits end. Im tired of getting diarrhea after most meals, Im tired of having to worry about where there are public restrooms. And mostly, im just really tired! About 10 years ago I was diagnosed with IBS after an incident of dizziness, blood in stools (i was told it was hemorrhoids), and diarrhea. I went on to have a colonoscopy, which showed juvenile polyps. ( I have had 2 subsequent colonoscopies that were normal). Ive been able to tolerate the IBS over the years, sometimes getting diarrhea for no reason...or being able to eat the same thing on numerous occasions and then have it give me diarrhea. About 2 years ago I started having really bad sinus infections (about 5 in a year), and at one point they prescribed me augmentin which gave me colitis.) In June of this year, I went to the Dominican Republic and came back with really bad diarrhea (like...really bad!). I was put on 2 rounds of antibiotics ,and while the consistancy of the diarrhea has changed, the frequency is still ridiculous. It is interfering with my work, social life and everything else. I get diarrhea multiple times daily, even after eating plain/bland foods. If it were IBS, would plain pasta cause diarrhea? Yesterday I had to leave work early after having severe cramps, sweating, nausea and diarrhea multiple times. Im afraid Im going to lose my job! I started looking online and celiac seems to match alot of my symptoms. Also, I have underlying medical conditions...which REALLY suck.

My Medical History:

Asthma since 8 months old (for several years wheat, yeast and chocolate would exacerbate asthma)

Third degree burns (Not related to anything except depression)

Polycystic Ovarian Syndrome (havent had normal periods for almost 15 years)

Gene positive for Huntington's Disease (ya..my futures real bright...)

Depression

Sleep disturbances

Night Sweats

Chronic Diarrhea

Bloating

Gas

Stomach Cramps

Chronic sinus infections requiring surgical intervention

Tonsil stones requiring tonsillectomy

Chronic costochondritis

low back pain

chronic fatigue

headaches

weird rashes on both forearms that dermatology couldnt diagnose (def not dermatitis herpatiformis)

and the list goes on....

I also have fam history of:

Colon Cancer

Breast Cancer

Huntingtons Disease

Kidney Failure

Multiple Sclerosis

Dementia

Diverticulitis

i had the blood testing done today for the celiac panel. I hope that this is what I have, because I am so tired of no answers. I already have enough medical conditions, I dont really need another. but at least with celiac there is a treatment! Do my symptoms sound like celiac to you? Im just tired of being depressed. And Im ONLY 27!


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Dixiebell Contributor

That is quite a history. Do you plan on having an endoscopy to check for celiac or other issues? If not you could try going gluten free for a few weeks and then try a gluten challenge and see how your body responds.

L-NO Newbie

That is quite a history. Do you plan on having an endoscopy to check for celiac or other issues? If not you could try going gluten free for a few weeks and then try a gluten challenge and see how your body responds.

I forgot that I've had barium swallows that show I have bad gerd. When I layed down, the pill came back up. So they told me to take over the counter pepcid (which isn't cheap!) i have an appointment with GI next month, and if he suggests doing a biopsy I'm all for it. At this point, I'd do anything to feel better and enjoy life.

Atrapos Newbie

Have you been tested for Crohn's disease? It can cause all sorts of nastiness.

L-NO Newbie

Have you been tested for Crohn's disease? It can cause all sorts of nastiness.

aside from a CBC to look for low rbc, hemoglobin and hematocrit or a stool sample to check for blood what are the other tests fo crohns? I haven't had any obvious signs of bloody stools ( other than black stools thanks to my friend pepto bismal). And I def don't have an issue with weight loss... What other symptoms of crohns should I look for?

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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