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I Need An Answer


L-NO

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L-NO Newbie

I just started reading about celiac yesterday because Im at my wits end. Im tired of getting diarrhea after most meals, Im tired of having to worry about where there are public restrooms. And mostly, im just really tired! About 10 years ago I was diagnosed with IBS after an incident of dizziness, blood in stools (i was told it was hemorrhoids), and diarrhea. I went on to have a colonoscopy, which showed juvenile polyps. ( I have had 2 subsequent colonoscopies that were normal). Ive been able to tolerate the IBS over the years, sometimes getting diarrhea for no reason...or being able to eat the same thing on numerous occasions and then have it give me diarrhea. About 2 years ago I started having really bad sinus infections (about 5 in a year), and at one point they prescribed me augmentin which gave me colitis.) In June of this year, I went to the Dominican Republic and came back with really bad diarrhea (like...really bad!). I was put on 2 rounds of antibiotics ,and while the consistancy of the diarrhea has changed, the frequency is still ridiculous. It is interfering with my work, social life and everything else. I get diarrhea multiple times daily, even after eating plain/bland foods. If it were IBS, would plain pasta cause diarrhea? Yesterday I had to leave work early after having severe cramps, sweating, nausea and diarrhea multiple times. Im afraid Im going to lose my job! I started looking online and celiac seems to match alot of my symptoms. Also, I have underlying medical conditions...which REALLY suck.

My Medical History:

Asthma since 8 months old (for several years wheat, yeast and chocolate would exacerbate asthma)

Third degree burns (Not related to anything except depression)

Polycystic Ovarian Syndrome (havent had normal periods for almost 15 years)

Gene positive for Huntington's Disease (ya..my futures real bright...)

Depression

Sleep disturbances

Night Sweats

Chronic Diarrhea

Bloating

Gas

Stomach Cramps

Chronic sinus infections requiring surgical intervention

Tonsil stones requiring tonsillectomy

Chronic costochondritis

low back pain

chronic fatigue

headaches

weird rashes on both forearms that dermatology couldnt diagnose (def not dermatitis herpatiformis)

and the list goes on....

I also have fam history of:

Colon Cancer

Breast Cancer

Huntingtons Disease

Kidney Failure

Multiple Sclerosis

Dementia

Diverticulitis

i had the blood testing done today for the celiac panel. I hope that this is what I have, because I am so tired of no answers. I already have enough medical conditions, I dont really need another. but at least with celiac there is a treatment! Do my symptoms sound like celiac to you? Im just tired of being depressed. And Im ONLY 27!

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Dixiebell Contributor

That is quite a history. Do you plan on having an endoscopy to check for celiac or other issues? If not you could try going gluten free for a few weeks and then try a gluten challenge and see how your body responds.

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L-NO Newbie

That is quite a history. Do you plan on having an endoscopy to check for celiac or other issues? If not you could try going gluten free for a few weeks and then try a gluten challenge and see how your body responds.

I forgot that I've had barium swallows that show I have bad gerd. When I layed down, the pill came back up. So they told me to take over the counter pepcid (which isn't cheap!) i have an appointment with GI next month, and if he suggests doing a biopsy I'm all for it. At this point, I'd do anything to feel better and enjoy life.

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Atrapos Newbie

Have you been tested for Crohn's disease? It can cause all sorts of nastiness.

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L-NO Newbie

Have you been tested for Crohn's disease? It can cause all sorts of nastiness.

aside from a CBC to look for low rbc, hemoglobin and hematocrit or a stool sample to check for blood what are the other tests fo crohns? I haven't had any obvious signs of bloody stools ( other than black stools thanks to my friend pepto bismal). And I def don't have an issue with weight loss... What other symptoms of crohns should I look for?

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    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
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