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Could This Be Celiacs?


Dancer

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Dancer Rookie

Hi everyone,

I just found your forum since I was searching for information on celiacs. I have had a range of unusual symptoms for a long time and everytime I go to the doctor I feel like a hypochondriac because nothing is done and nothing is found as a reason for these. I will be going for a test soon but can anyone tell me if these things sound like they may be related to celiac disease.

Abdominal pain, bloating, flatulence, inability to tolerate many foods like cake, ice cream, buscuits and many others, very severe hay fever and sinusitis, consitpation, unexplained wieght loss, moodiness, irritability, anxiety and depression, sometimes fatique, dry mouth and skin, like an inability to hydrate sometimes.

Other things happen like if I don't take a vitamin B suppliment my hands shake even though I eats loads of foods rich in B vitamins.

There are other things that are listed as symptoms which I seem to never have like diareah (sorry spelling)

Can anyone identify with some of the things here that aren't listed as symptoms?

thanks


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WheatChef Apprentice

The reason why gluten intolerance goes undiagnosed for so long in people is because all of its symptoms are quite vague. Everything you listed could easily point towards gluten intolerance but it certainly doesn't single it out. If you do think that this all may be related to your diet somehow, have you tried keeping a food diary? A written record of what you eat and what symptoms you experience is very very helpful for adequately assessing your situation, it's part of what helped me figure out my health issues.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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