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Weight Loss


Zoebearsmom

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Zoebearsmom Newbie

How is the weight loss determined. My 7 year old daughter has always been a slow gainer but in 2 years she hasn't gained weight. She does but it comes right back off. Its frustrating because the Dr. seems worried though she is still in normal percentiles at a curve she has stayed on with exception maybe to this last visit showing she hasn't gained since her 5 year well child exam.

Does gaining and losing the same 5 lbs count as weight loss as a symptom? I'm not sure I want to submit her to testing and just try out a gluten-free diet. Should I actually have her tested before removing it form diet.

I suspect we could have had undiagnosed family history. My grandmother had stomach issues most of her life. In her later years they determined she did have Chrohns Disease and I know this sometimes goes a long with celiac.


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WheatChef Apprentice

I believe the correct technical term in such a case is "failure to thrive". Failure to thrive coincidentally is also a possible symptom of gluten intolerance. Besides cost, there are no downsides to testing. There is however a downside in assuming any test can prove that you DON'T have gluten intolerance. In almost all aspects of science it is impossible to state that something does not exist, in reality it could be sampling size, experimental design, sensitivity, accuracy, any host of measures not being able to accurately measure something. This is why tests look to show the presence of something, not the absence.

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    • trents
      Yes, it does. And joint pain is another celiac symptom that is now well-recognized. 
    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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