Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

"glutened" Symptoms


BrookeT

Recommended Posts

BrookeT Apprentice

Hi there,

I was recently diagnosed with celiac about 2 1/2 months ago and started to feel a bit better about 2 1/2 weeks ago .....until my birthday weekend which was about a week and a half ago. I went out to eat a few times, and I have felt like crap ever since. I thought I was so careful in choosing the restaurants and asking the right questions but apparently it did not do me any good. I also had some Imagine brand potato leek soup at home and felt bad after I ate it. So, who knows..... I wonder if anyone else has had trouble with that brand. I have felt so run down, crabby, anxious & depressed, along with stomach rumblings, painful gas/bloating/cramps in my lower abdomen/pelvic area, c & d, headache and pain in my right hip and lower back. How long does it typically take to start to feel better after being "glutened?" It's been a little over a week and a half so far for me. That just seems like a very long time. Are there any specific things I should be eating or doing to help speed along recovery?

Can anyone else relate to having "glutening" symptoms last for such a long time? I appreciate your input.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Hi there,

I was recently diagnosed with celiac about 2 1/2 months ago and started to feel a bit better about 2 1/2 weeks ago .....until my birthday weekend which was about a week and a half ago. I went out to eat a few times, and I have felt like crap ever since. I thought I was so careful in choosing the restaurants and asking the right questions but apparently it did not do me any good. I also had some Imagine brand potato leek soup at home and felt bad after I ate it. So, who knows..... I wonder if anyone else has had trouble with that brand. I have felt so run down, crabby, anxious & depressed, along with stomach rumblings, painful gas/bloating/cramps in my lower abdomen/pelvic area, c & d, headache and pain in my right hip and lower back. How long does it typically take to start to feel better after being "glutened?" It's been a little over a week and a half so far for me. That just seems like a very long time. Are there any specific things I should be eating or doing to help speed along recovery?

Can anyone else relate to having "glutening" symptoms last for such a long time? I appreciate your input.

It takes me about 3 weeks to feel all the way better. The D lasts 2 days and then the horrible joint pain sets in. The 3rd week, I get a migraine and dh on my knees. What you are experiencing is pretty typical. Hope you feel better soon!

Mint tea really helps me get through the intestinal pain and gas etc. Advil or Tylenol helps a little too and just resting and waiting it out is really all that you can do. Sometimes a heating pad helps the pain too.

Link to comment
Share on other sites
MegRie Rookie

When I went gluten free I felt amazing after 3 days. I've been Gluten-Free for about 4 months now and I do have bouts with feeling like this as well. I usually end up finding out that I have been consistently eating something I shouldn't. For example my last mess-up was with shredded cheese. Normally cheese (except blue cheese) is fine, but shredded cheese often has additives to keep the cheese from clumping. It doesn't say on the package, but these can often be derived from wheat.

I would say- hang in there, I think we have all been through the same thing, and continually check your food. If you aren't sure about something check it online. There are so many opportunities for cross contamination as well. I don't kiss my hubby after he has a beer until he brushes his teeth, for example.

Hope you get to feeling better soon! It's a process that's for sure!

Link to comment
Share on other sites
Mari Explorer

I also use strong mint tea. It is the intestinal bacteria causing the gas and bloating so you might try starving them by reducing the amount of carbohydrates in the diet, especially the grains and potatoes. I have found taking the spice turmeric (see recipes online) helps with irritability. If this continues you might ask your Dr to do some tests to identify the the organisms causing problems in your intestine.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,069
    • Most Online (within 30 mins)
      7,748

    angie78
    Newest Member
    angie78
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...