Mari
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Latest Celiac Disease News & Research:
Everything posted by Mari
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Is Thiamine Deficiency the Beginning of Celiac Disease?
Mari replied to knitty kitty's topic in Coping with Celiac Disease
It is rather amazing to me that I was able to follow, in a general way, your reasoning in this scientific thesis. It is very good work on your part taking different research papers and tying the information together if not for a cure for celiac disease, the ability to decrease the symptoms of celiac disease and other autoimmune conditions. Now if you can... -
Hi Kelly, We have had at keast 2 discussions abour people with Celiacs moving into assisted living. . No easy solutens to the problems Celiacs face when they cannot eat the food served so they need to prepare their own meals or order gluten-free meals. You seem to be coping quite well. It is not clear to me whether you are suffering because you miss...
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Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty...
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Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems...
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hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente...
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Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy.
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Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties...
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Leople with celiac disease have differebt levels of sensitivities to gluten. Some react to tiny amount of gluten in the environment, others.Others only react only to larger amounts as in their food, such as cross contamination. If you are strictly on a gluten-free diet you may already have figured out whether you are more or less sensitive to gluten. There...
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I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
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OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
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Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
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Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead...
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jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
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Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
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Hi again JMartes, Would you mind telling us some of your symptoms or why you need for your Dr to do more for you. What is your main concern about your health right now? We can give you some advice based on our own problems with Celiac Disease. It may be that the anger and frustration you are experiencing is doing more damage to your body than your Celiac...
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There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
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As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
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Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
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Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
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Ocd making gluten fears unmanageable. Need advice
Mari replied to Dora77's topic in Coping with Celiac Disease
I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body... -
Hi Vicky' If you are hesitant to visit your medical provider and if this discomfort persists you may choose to do that. I do have some suggestions and how ai have delt with digestive problems not caused by gluten but likely a result of having the autoimmune reaction in my small intestine for all the years before going gluten free. Before I stopped eating...
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Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten. Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with...
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Long term recovery
Mari replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi James47, You are less than 2 years into your recovery from Celiacs. Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating. For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of... -
Hi Emily, What you described is very similar to what I experienced in coping with Celiacs. I think my first symptoms started when I was about 3 and I wasn't diagnosed until I was almost 70. I got along OK util I was about 30 when I began to have more problems that the Drs thought was an autoimmune problem that they couldn't identify. Then I worked in...
