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Mari

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Everything posted by Mari

  1. Mari
    Hi Mitchmap, I've been gluten-free for 18 years. The Dr. did not tell me about the gluten challenge before taking the Celiac Panel blood test. The IgA was elevated but the TTG was in the normal range. I was eating very little gluten foods at that time. When I see a new provider they want to do the endoscopy (camera) but I tell them that if I'm glutened...
  2. Mari
    Thank you Scott Adams. I was hoping for some references. My eyesight is poor so it makes it difficult to find references, difficult to read small print. I will share these links with my nephew.
  3. Mari
    In the United States there is a laboratory - Genova Diagnostics, that offers very complete fecal examinations. I asked a Dr. to order a fecal test from them and they sent me a collection kit with dry ice. I collected the sample and sent it back the same day with UPS. The report was extensive and picked up a parasite and an intestinal pathogenic bacteria...
  4. Mari
    I seemed to have had celiac disease from when I was about 3 years old and was diagnosed just before I turned 70 so I have been gluten-free for 18 years. I think that my sister also is Celiac but with quite different symptoms. She had extreme hair loss dating back to about her first pregnancy and has worn a wig for many years. Her son took the 23&me test...
  5. Mari
    Hi Emma - I just wanted to share some information I learned after a Dr suggested that I had gluten intolerance and I began researching this problem. It seems that when a person begins to react to gluten grains that the reaction starts at the lower part of the small intestine just above the ileo-Cecal Valve. This is a small sphincter muscle on the right side...
  6. Mari
    Hi Natalie14, To avoid having a reaction to small amounts of gluten in your food keep a supply of anti gliadin enzyme capsules to take with each meal. I use the product advertised here, GliadinX, but different brands are offered at your local pharmacies. One person suggested that you have your own gluten-free toaster. Also a rice steamer would...
  7. Mari
    Hi Mads - I have wondered for years why so many Celiacs report having such immediate reactions to foods containing gluten. Others here have suggested you could have food intolerances or allergies which you may discover , remove from your diet and have less problems. But for more immediate relief it reminded what my health provider said when I told her...
  8. Mari
    About 10 years before a Dr. suggested I might have celiac disease and ordered a Celiac Panel I began to have a strong reaction to hot peppers and now cannot tolerate any amount of hot peppers without reacting. Over the next few years I began to react to almost any spicy herb and despite being gluten-free for 17 years these sensitivities persist. Back then...
  9. Mari
    Hi Jane07 - I tried keeping eat out of my diet but it did not work for me. That was 16 years ago and now there is a lot of advice online for Celiacs who want to be vegan or vegetarian, Put "gluten free veg" in your browser and many helpful sites come up. You may still need to add some supplements such as Vit B12 and D3. Your health provider can order some...
  10. Mari
    Well this is Saturday evening and I hope you are feeling a little better. But if this is dragging on and still a problem it could be best to see your provider or return to the ER soon to have this checked out.
  11. Mari
    I had that problem for years so I know how uncomfortable it can be. Now I don't have heartburn very often. The first remedy I found was an Aqueous (water based) Lugol's Iodine solution called Stomach Saver. I buy it online. If you use this start with only one drop in water then build up to the full dose. Do not use topical iodine solutions as they are not...
  12. Mari
    Hello again Nikki - I think you and your husband are doing well. As long as you have an income you can put aside enough money to cover your expenses when you decide to retire. There are some good options. Some of the people in my age group and younger have gone to live in apartments in Senior living facilities. They have kitchens and all that you would need...
  13. Mari
    Hi Nikki - I went through a period after I was told I had Celiacs when I was 70 of looking for a place to go when I retired. That was in 2006. I wrote to several places mentioning that I needed a gluten-free diet and had some allergies and was very sensitive to chemicals. No replies to those messages. I posted in several Celiac forums but did not find others...
  14. Mari
    Good Luck!
  15. Mari
    If this type of approach keeps you from having these episodes you have described then that is good. I hope so. If not you can read some of the other comments and work with your health care provider to find other causes of your episodes.
  16. Mari
    Hi LindaLee - I have had a similar problem with constipation but not from an injury but it seems that I have narrow areas in my gut so that the bolus doesn't move along smoothly but gets hung up in these areas. I don't usually notice this when I am awake and moving around but it keeps me awake when I go to bed. Before I went gluten free I found that I could...
  17. Mari
    I have used cascara sagrata and senna. These herbs can be habit forming so it is not good to use them daily. Diet, I've found, is very important. I eat gluten-free breads, vegetables with fiber, potatoes for soluable fiber. I drink lots of carrol juice. If I eat too much fats or oils it results in 'sticky stools' which do not pass through the small or large...
  18. Mari
  19. Mari
  20. Mari
    This report reminds me of a tissue typing report, a woman had been tested for compatibility for a bone marrow transplant and it seemed she did have one of the main celiac gene DQ B alleles. The DQ B alleles correlate more than 99% with a predisposition to develop celiac disease so for this purpose the results of the DQ A alleles can be ignored. The DQ B...
  21. Mari
    It's wonderful that you have come through the withdrawal and are finally feeling the good effects of the gluten-free diet. There was a lot of comment about a year ago when a scientific paper reported that gluten and casein both contain addictive opoids and some people were having as much trouble with the withdrawal as you had. The other posters have given...
  22. Mari
    Lately I've been using futurebiotics Vegetarian Enzyme Complex. It has several digestive enzymes, Lactobacillus spores and Betaine-HCl all in one pill. When I buy probiotics I would get one with a mixture of good bacteria. The last that I used had 9 different 'good' bacteria. Mostly now I use sheep milk yogurt with live cultures. Some people use both milk...
  23. Mari
    I think it is clear from your lab tests and symptoms that you have Celiac Sprue. I had an elevated antigladin IgA but a normal TTG blood test. I had floating stools so I had sprue. I read that people with flattened villi would often show a normal TTG so if that test is used for diagnosis it misses some people who have extensive flattening of the villi. If...
  24. Mari
    I did a search for 'dgp iga' Here's one result: Positive Deamidated Gliadin Peptide Antibodies and Negative Tissue ... Mar 31, 2010
  25. Mari
    I developed an allergy to hot peppers several years before being diagnosed with celiac disease. Then I read that this is a fairly common allergy for Celiacs. Even ketchup gives me a reaction. Allergies to wheat and related grains is also common with Celiacs as is cows milk allergy and lactose intolerance. Besides the rice you may be able to eat gluten-free...
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