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Mari

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Everything posted by Mari

  1. Mari
    I've used the food lists from the SCD for about 4 years and it has been very helpful. Some alternative and herbal remedies have also helped a lot and those programs and remedies kept me going for all the years I was undiagnosed. It has been helpful to do herbal parasite cleanses, I did not realize that the worms and other parasites living in me were interfering...
  2. Mari
    I have been reading up on B12 as a test showed I was way below normal. First I tried to take sublingual doses (1000 mg) but did not tolerate them, then took a month of injections weekly (1000mg), then found pure B12 (1000 mg.) capsules online and used them. B12 needs to be balanced by taking B6 and Niacian. I'm using Betaine HCl to improve stomach acids...
  3. Mari
    The gas is being produced by bacteria and yeasts in your gut. When people have an unbalanced mixture of organisms in their intestine it is common for people to have lots of gas, especially if they eat too many carbohydrates, sugars and other foods these organisms thrive on. The gastroenterologist will do the tests necessary to find the underlying causes and...
  4. Mari
    A elevated antibody to a food is considered positive whether you have the blood tests or the more sensitive fecal tests. A negative test, (no elevated antibodies) does not rule out a food allergy. As the enterolab report said you need to avoid those foods from your diet for 12 months. Some foods you may be able to add back later, some foods you will always...
  5. Mari
    What causes the bloating and gas is the bacteria and yeasts in the intestine over-growing on undigested and partly digested food eaten. When the small intestine is reacting to gluten or other foods it becomes inflamed and food passes through more slowly giving these organisms a longer time to grow and produce more gas. Many of these organisms also produce...
  6. Mari
    What is causing all that gas and bloating are the gas producing bacteria in the gut feeding on partly digested and undigested foods. It may help you to take an acid supplement such as Betaine-HCl which will prepare food for digestion and it also helps to kill off bacteria and other organisms in food or from your hands when eating. To help digest the foods...
  7. Mari
    At the top of the page click on Celiac info, I remember seeing a page of tests which follow how well you are recovering on a gluten-free diet. My Dr refused to do most of the tests and it wasn't until I had a more serious problem, a small transient stroke, that she ordered some of them. I could have probably avoided that problem (6 hrs in the ER 60 miles...
  8. Mari
    Yes do have the vitamin tests. My Dr did not test for B vitamins and I was not absorbing them from my diet and couldn't tolerate the pills. Taking B12 has really been effective in clearing up some lingering intestinal problems. When finally tested almost 5 years gluten-free the B12 was very low. I tried sub lingual pills but did not tolerate them so got...
  9. Mari
    I had itching rough skin and bumps on my scalp before going gluten-free. Most of that cleared up as I began to heal and adsorb more vitamins, nutrients and minerals from food and supplements. A few years on the gluten-free diet I ate some wheat crackers by mistake and the itchy skin and scalp bumps were the last symptom to arise (several weeks) and the last...
  10. Mari

    ARCHIVED Dry Eyes, Too?

    Mari replied to MEH's topic in Coping with Celiac Disease

    I did have a Celiac Panel of blood tests when the Dr suspected Celiac Disease. The results were confusing, the alpha gliadin antibodies were elevated but the tissue transglutaminase antibodies were not elevated. I knew that if I tried to eat gluten again I would be very ill so instead had the genetic marker test done. These tests showed that I had a high...
  11. Mari
    I had this type of problem for years. One time it was head lice but the other times it was not. In this area quite a few people have gotten scabies in their scalp. The easiest treatment is to use Diatomaceous Earth, a fine power which smothers the parasites. There are images of lice egg cases online, using a magnifying glass helps find them. I searched...
  12. Mari

    ARCHIVED Probiotics

    Mari replied to willabec's topic in Related Issues & Disorders

    I like Kyodophilis 9 best. Often I use Futurebiotics Vegeterian Enzyme Comples which has Acidipholus, Digestive enzymes and Betaine HCl in one pill. Goat's milk kefir was good for a while but goat dairy does not agree with me very well. Homemade, digested overnight, cow or goat yogurt is used with the Specific Carbohydrate Diet.
  13. Mari
    Hi Shauna, I have looked at several studies who were asking for volunteers. They all required the subjects to have had positive blood tests and small intestine biopsies. I had an elevated anti alpha gliadin but a mormal anti TtG, no biopsy, one hi risk main celiac gene (DQ8) and one gene putting me at risk for non-celiac sprue so I would not have been accepted...
  14. Mari
    Please do post your Enterolab results. I also used Enterolab, my two b allele markers are 0302 and 602. Drs are more familiar with the molecular serology terms so these translate to HLA-DQ8 and HLA-DQ6. DQ8 indicates a main celiac gene and DQ6 confers a predisposition to non-celiac sprue also called Leaky Gut Syndrome. Both of these conditions are gluten...
  15. Mari
    It has been at least 10 years since going cow dairy free. I'm not lactose intolerant but do make antibodies to cow dairy. Last year, 4 years gluten-free I decided to try some cow dairy and choose some gluten-free butter cookies and reacted. I have a little intestinal reaction then 3 - 4 days later my ankles swell, as they used to. I've read that some...
  16. Mari
    Nice to hear from another mini farmer, I did biointensive farming for 15 years before retiring. I didn't raise animals, had dogs and cats over the years. I'm very sensitive to gluten, being near a pot of boiling sphagetti gave me problems for days - was I ever fog headed and scared to drive. I could not use some fertilizers and soil amendments so learned...
  17. Mari
    I agree with the other posters. Adding a calcium supplement and Vit D3 will help add to strong bones and cartledge. For joint pain, since I can't take most pain meds, I used the spice turmeric, see recipes online - and also was able to cure Lyme Disease. Lyme is a problem with many Celiacs and there are good tests for it. Lyme can cause swollen, painful joints...
  18. Mari
    I agree with starrytrekchick, it's good to be tested. Remember that the usual tests can miss up to 30% of people who have celiac disease. I had confusing blood tests - elevated anti gliadin but normal anti tissue transglutaminase. I ordered the genetic marker (DNA) test which showed a main celiac gene and a gene for Leaky Gut Syndrome. I was at high risk...
  19. Mari
    I usually eat foods I prepare myself but sometimes when I eat commercially prepared food I notice an unpleasant body odor. Although the liver usually removes toxins and pollutants, some of these are removed in the body fluids by sulfur containing amino acids and are sweated out by the sweat glands. I can usually tell if I've eaten a toxin - the next day...
  20. Mari
    Pale stools are often an indication that not enough bile from the liver is being squirted in tho the food you have eaten. Biliary congestion is common in people with Celiac Disease, usually because the system is clogged with gallstones, bile sludge and parasites. In my experiences it can also be caused by inflammation of the small intestine, swelling the...
  21. Mari
    I had a transient ischemic attack (TIA) - a small transcient stroke recently and went thru all sorts of expensive tests which showed no problems. When I was younger I would get dizzy if I stool up too fast. Since the Drs didn't figure out the cause I went to an alternative medicine book and read there that the TIA could have been caused by an overload of...
  22. Mari
    It is sad that you had to deal with ill health for your growing years but it is wonderful that you have the courage and intelligence to start figuring out what your problems are. Don't be discouraged if the gluten tests come back negative or inconclusive because they are not completely accurate and there are other problems which can be cured or improved and...
  23. Mari

    ARCHIVED Fosamax

    Mari replied to BoydBT's topic in Coping with Celiac Disease

    Before perscribing Fosamax Drs are advised to rule out Celiac Disease. Studies have shown that it is ineffective for gluten related osteoporosis and many celiacs have reactions when they take it. Yet many Drs are still perscribing Fosamax and related meds. My Dr wanted me to take this so I told her it was not indicated, well she didn't believe me but finally...
  24. Mari
    DQA1*0301, 0501 DQB1*0201, 0302 The Wikipedia articles on HLA-DQ, HLA-DQ2 and HLA-DQ8 are quite good. The DQB alleles are the most significant for celiac disease. Using the molecular serology terminology you are a DQ2 (0201) and DQ8 (0302). The DQ8 is a subcategory of DQ3. My DNA analysid (DQA not done) DQB1 0302 and 602. We share the same main celiac...
  25. Mari
    Some while ago another person in the military was diagnosed with celiac disease. It was arranged that she would be assigned to units where gluten-free foods were available. Maybe you can find her messages.
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