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Mari

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Everything posted by Mari

  1. Mari
    I live alone but thought I would reply as keeping gluten-free is one of my major preoccupations. It seems to me you are aware of most of what you need to do and are doing it very well. Are you having some symptoms that you think are caused by gluten? If not, then from what I have read, occasional ingestion of very small amounts of gluten won't usually raise...
  2. Mari
    when I worked in labs it was not unusual to find a unexpected low hemoglobin. The Drs sometimes miss this. One time I noticed a thin looking blood sample and did the hemoglobin even tho it had not been ordered. I called the Dr and it turned out to be his mother-in-law, he was very grateful. I searched for 'premarin bleeding' and got lots of websites....
  3. Mari
    Ask your Dr to order a test for Lyme Disease which is common in Celiacs. And ask for tests to see if you have low vitamin levels - especially Vit D and Vit B12. The Dr I see did not know to order these tests and I became very weak and tired and obviously sick before she would order them. The Vits were low and the Lyme test was positive.
  4. Mari
    I have read that reflux problems are common in Celiacs and recently read an article where a Dr actually referred to celiac disease as a reflux disease. Some Drs may tell you that you have swallowed air and are burping it back out, especially if you are a smoker. But it is more likely since you are burping bad smalling gas after eating eggs that you have some...
  5. Mari
    You may want to look at The Gluten Syndrome Website for an overview of problems that gluten causes. When my test came back with confusing results I ordered the Genetic Marker (DNA) test and found that I had one main Celiac gene and another gene which made the celiac worse. Another test some Drs prefer is the molecular serology test offered by Prometheus Labs...
  6. Mari
    Oh yes. I had to give up my job working in medical laboratories, had to give up my PhD program because I was too tired to continue, eventually moved to a rural area to avoid the pollution, started becoming a successful sculptor but had to give that up because of increasing brain fog and confustion. Started a plant nursery and minifarm so I could work outside...
  7. Mari
    Recently I was having a lot of bloating and wind and none of my usual remedies helped very much. I happened to have some dried hoarhound in a jar and looked up what it is good for. It is a mild laxative besides being good for lung congestion although it may have some hypoglycemic effect, other than that it seemed quite safe to use. And it is also a paracide...
  8. Mari
    I've used the food lists from the SCD for about 4 years and it has been very helpful. Some alternative and herbal remedies have also helped a lot and those programs and remedies kept me going for all the years I was undiagnosed. It has been helpful to do herbal parasite cleanses, I did not realize that the worms and other parasites living in me were interfering...
  9. Mari
    I have been reading up on B12 as a test showed I was way below normal. First I tried to take sublingual doses (1000 mg) but did not tolerate them, then took a month of injections weekly (1000mg), then found pure B12 (1000 mg.) capsules online and used them. B12 needs to be balanced by taking B6 and Niacian. I'm using Betaine HCl to improve stomach acids...
  10. Mari
    The gas is being produced by bacteria and yeasts in your gut. When people have an unbalanced mixture of organisms in their intestine it is common for people to have lots of gas, especially if they eat too many carbohydrates, sugars and other foods these organisms thrive on. The gastroenterologist will do the tests necessary to find the underlying causes and...
  11. Mari
    A elevated antibody to a food is considered positive whether you have the blood tests or the more sensitive fecal tests. A negative test, (no elevated antibodies) does not rule out a food allergy. As the enterolab report said you need to avoid those foods from your diet for 12 months. Some foods you may be able to add back later, some foods you will always...
  12. Mari
    What causes the bloating and gas is the bacteria and yeasts in the intestine over-growing on undigested and partly digested food eaten. When the small intestine is reacting to gluten or other foods it becomes inflamed and food passes through more slowly giving these organisms a longer time to grow and produce more gas. Many of these organisms also produce...
  13. Mari
    What is causing all that gas and bloating are the gas producing bacteria in the gut feeding on partly digested and undigested foods. It may help you to take an acid supplement such as Betaine-HCl which will prepare food for digestion and it also helps to kill off bacteria and other organisms in food or from your hands when eating. To help digest the foods...
  14. Mari
    At the top of the page click on Celiac info, I remember seeing a page of tests which follow how well you are recovering on a gluten-free diet. My Dr refused to do most of the tests and it wasn't until I had a more serious problem, a small transient stroke, that she ordered some of them. I could have probably avoided that problem (6 hrs in the ER 60 miles...
  15. Mari
    Yes do have the vitamin tests. My Dr did not test for B vitamins and I was not absorbing them from my diet and couldn't tolerate the pills. Taking B12 has really been effective in clearing up some lingering intestinal problems. When finally tested almost 5 years gluten-free the B12 was very low. I tried sub lingual pills but did not tolerate them so got...
  16. Mari
    I had itching rough skin and bumps on my scalp before going gluten-free. Most of that cleared up as I began to heal and adsorb more vitamins, nutrients and minerals from food and supplements. A few years on the gluten-free diet I ate some wheat crackers by mistake and the itchy skin and scalp bumps were the last symptom to arise (several weeks) and the last...
  17. Mari

    ARCHIVED Dry Eyes, Too?

    Mari replied to MEH's topic in Coping with Celiac Disease

    I did have a Celiac Panel of blood tests when the Dr suspected Celiac Disease. The results were confusing, the alpha gliadin antibodies were elevated but the tissue transglutaminase antibodies were not elevated. I knew that if I tried to eat gluten again I would be very ill so instead had the genetic marker test done. These tests showed that I had a high...
  18. Mari
    I had this type of problem for years. One time it was head lice but the other times it was not. In this area quite a few people have gotten scabies in their scalp. The easiest treatment is to use Diatomaceous Earth, a fine power which smothers the parasites. There are images of lice egg cases online, using a magnifying glass helps find them. I searched...
  19. Mari

    ARCHIVED Probiotics

    Mari replied to willabec's topic in Related Issues & Disorders

    I like Kyodophilis 9 best. Often I use Futurebiotics Vegeterian Enzyme Comples which has Acidipholus, Digestive enzymes and Betaine HCl in one pill. Goat's milk kefir was good for a while but goat dairy does not agree with me very well. Homemade, digested overnight, cow or goat yogurt is used with the Specific Carbohydrate Diet.
  20. Mari
    Hi Shauna, I have looked at several studies who were asking for volunteers. They all required the subjects to have had positive blood tests and small intestine biopsies. I had an elevated anti alpha gliadin but a mormal anti TtG, no biopsy, one hi risk main celiac gene (DQ8) and one gene putting me at risk for non-celiac sprue so I would not have been accepted...
  21. Mari
    Please do post your Enterolab results. I also used Enterolab, my two b allele markers are 0302 and 602. Drs are more familiar with the molecular serology terms so these translate to HLA-DQ8 and HLA-DQ6. DQ8 indicates a main celiac gene and DQ6 confers a predisposition to non-celiac sprue also called Leaky Gut Syndrome. Both of these conditions are gluten...
  22. Mari
    It has been at least 10 years since going cow dairy free. I'm not lactose intolerant but do make antibodies to cow dairy. Last year, 4 years gluten-free I decided to try some cow dairy and choose some gluten-free butter cookies and reacted. I have a little intestinal reaction then 3 - 4 days later my ankles swell, as they used to. I've read that some...
  23. Mari
    Nice to hear from another mini farmer, I did biointensive farming for 15 years before retiring. I didn't raise animals, had dogs and cats over the years. I'm very sensitive to gluten, being near a pot of boiling sphagetti gave me problems for days - was I ever fog headed and scared to drive. I could not use some fertilizers and soil amendments so learned...
  24. Mari
    I agree with the other posters. Adding a calcium supplement and Vit D3 will help add to strong bones and cartledge. For joint pain, since I can't take most pain meds, I used the spice turmeric, see recipes online - and also was able to cure Lyme Disease. Lyme is a problem with many Celiacs and there are good tests for it. Lyme can cause swollen, painful joints...
  25. Mari
    I agree with starrytrekchick, it's good to be tested. Remember that the usual tests can miss up to 30% of people who have celiac disease. I had confusing blood tests - elevated anti gliadin but normal anti tissue transglutaminase. I ordered the genetic marker (DNA) test which showed a main celiac gene and a gene for Leaky Gut Syndrome. I was at high risk...
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