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Mari

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Everything posted by Mari

  1. Mari
    Look at the Specific Carbohydrate Diet - it starts you out with no grains and as you imrove you can add them back. Many celiacs respond well to this diet, it's gluten-free and nutritious. I was able to start trying out different foods after several months. A general rule for eating is not to have the same food more than one time each day and not have the...
  2. Mari
    When the ova is fertilized by the sperm it has only one strand of DNA, the sperm contributes another strand of DNA and the 2 strands come together and form a double stranded DNAs. There are several "Celiac genes" associated with Celiac Disease but the one which correlates more than 99% is the DQ gene on chromasome 6 so it is used to tell if a person inherited...
  3. Mari
    Sorry you are feeling 'down' but if you have a copy of the test which showed the DQ8 it would tell you if you inhertited one or two copies of that DQ gene. We get one from our mom and one from our dad as you know. The DNA genetic marker test is easier to read but if you had the molecular serology test from Prometheus Labs it is harder to intrepret but you...
  4. Mari
    I can't remember whether I mentioned this before but it might be very helpful for you to have an intestinal flora test at Metametrix Labs. Several people on the Curezone Forums have had the test and it identified many invaders - bacteria, yeasts, parasites, viruses in the gut. Some chose to have the troublesome ones treated with meds and others chose to use...
  5. Mari

    ARCHIVED Need To Vent

    Mari replied to K8ling's topic in Coping with Celiac Disease

    Too bad that all mLaws are not the caring, respectful people we wish they were. I can imagine a person as sensitive to gluten as you are reacts just being in the place. You were reluctant to go there and no doubt your mLaw picked up on your tension and anxiety as you began to react and became more irritable and sensitive to the people arund you. So she was...
  6. Mari
    It is true that many of us become very sensitive to gluten a while after going gluten-free. Last Nov. I had a severe reaction from being in the same place as a large pot of boiling spaghetti - it took about 5 months for the last problem, dry itchy skin - to clear up. After my own experiences and reading a lot online I does seem the body's immune system...
  7. Mari
    I have been gluten-free and cow dairy free for more than 4 years. I felt better after a few days gluten-free but the tests were not conclusive so I read about celiac disease online, have a brother with Type 1 Diabetes so immediately ordered the DNA marker test. I had inherited the predisposition from both parents (DQ2/DQ2) and that firmly convinced me to...
  8. Mari
    Your results are similar to a glucose tolerance I had done years ago. I worked in a medical lab at the time and the pattern was referred to as a dumping curve with no clear explanation. In older tests they would do fasting then sometimes a 15 min sample, a 1/2 hr sample then hourly for up to 5 hrs. Your result is an unusal pattern for a diabetic but common...
  9. Mari
    If it clears up eventually it may have been a reaction to gluten but it may take several months or longer to clear all of the gluten from the body. One place tha gluten collects is in plaques along the intestinal wall. You might take a handful of digestive enzymes at bedtime and digest them away. It may be a reaction to something you are touching, an allergy...
  10. Mari
    I would encourage you to have the DNA genetic marker tests. A Dr. said she thought I had celiac disease and ordered a Celiac Panel, anti gliadin antibodies, ttg and allergies to food common in celiac disease. Only the anti gliadin was elevated along with allergies to cow's milk and hot peppers. I definatly felt better after a few days gluten-free, but the...
  11. Mari
    A good place to find information is the FAQ at Enterolab.com and Wikipedia for Celiac Disease. There are 4 online Labs which offer DNA tests for Celiac Disease. There is one Lab which offers a 'molecular' serology test for celiac disease, available through a Dr and it causes considerable confusion unless both you and your Dr are experts, and most aren't....
  12. Mari
    Today is Day 1 of being gluten-free for me. I have a few basic questions. 1- How long should I be gluten-free before I introduce gluten again to see if I react? Im thinking 30 days, and if I feel great I might take it another 30 before I test myself. I really feel the need to test myself and not just go by feeling better. YOU MAY NOT HAVE TO DO A CHALLANGE...
  13. Mari
    I get some neuological symptoms when my intestinal flora are imbalanced but it is mostly that creepy crawly feeling in my extremities. I certainly have less anxiety and depression when I'm gluten free but still get episodes when I get overgrowths of certain bacteria in my gut which produce toxins or yeasts. I use alternative/herbal methods to cope with these...
  14. Mari
    Go to the FAQ page at Enterolab.com which tests for the celiac disease Genetic Markers (alleles or some times called genes). Depending on which markers you inherited, one from Mom and one from Dad a person can have a more or less serious form of celiac disease. There are many different markers and not all of them predispose to celiac disease and if you have...
  15. Mari
    I can see that this is difficult for you, particularly if food handling is the only job you are trained for and you are satisfied with this type of work. Any other similar job might present the same problems. You might contact your local government agency and look into unemployment benefits which might bridge the gap until you find a different kind of work...
  16. Mari
    I have had muscle testing by an ND and found it very good for some problems and not very good for other problems. The ND said she found it to be about 80% accurate. I don't know if she tested me specifically for wheat or gluten, possibly not because she didn't say I was having a problem with it. She has been telling people to avoid gluten for the past 20...
  17. Mari
    My question is this - how many of you have had yellow stool and gallbladder issues as a direct result of gluten? I'm wondering if its the reason this is happening. As opposed to a completely separate issue in addition to gluten. If you did have this, did removing the gluten help? Since you have 'yellow' or light colored stools something is interferring...
  18. Mari
    Hello Philippa - I had endrmetriosis when I was young and sometimes very heavy periods. In my 40's I had my second d&c and shortly after that I did a herbal program to kill parasites. My next pap was negative and no more problems. It also got rid of the white plaque in my mouth. However I have read that endometriosis clears up at menopause and I started...
  19. Mari
    Hi Kors, Enterolab offers more sensitive fecal tests for celiac disease. You can write them and describe what you've been doing and ask if their tests would be OK. Celiacs are often infected with Lyme disease. I had that problem for years with a low grade fever - 100 or less. There is a good test for this and my blood test went from negative to positive...
  20. Mari
    I have some suggestions for you but wanted to say first that you are doing just great. It seems to me from what you wrote that you may have a problen with intestinal yeasts or other organisms which have overgrown the normal intestinal flora. Many of start out with this problem and sometimes we have to find out what is causing it. Lately I've seen several...
  21. Mari
    Hi BC, The blood tests are not always positive - a more sensitive test is the fecal antibody tests offered at Enterolab.com. And while looking at their informative website look at the genetic DNA marker tests which you do not have to be glutened to have. If you choose to have blood tests be sure they test for anti-gliadin antibodies and tissue transglutaminase...
  22. Mari
    I guess I'm the oldest so far, diag. at 70 but I read a message from a woman's daughter who was 86! and doing better. I'd had celiac disease all my life and after more than 4 years gluten-free and dairy free I'm returning to health tho it's been slow progress. Problems with diet and allergy I partly solved by using the Specific Carbohydrate Diet, and since...
  23. Mari
    I can't tolerate psyllium so have used hemp seed meal and am now using oat bran which I order from Montana Monster Munchies. I have stopped using probiotics and use goat's milk yogurt, it's easy to make. The probiotics I was using had a mix of 9 different bacteria including acidophilus. I found that advice to use the yogurt from the Specific Carbohydrate...
  24. Mari
    Remember that the only person you have to really convince is yourself - not your mom or siblings - tho their support will be helpful. That may not happen until you have some obvious improvent in your health problems. So going as gluten free as you can is a good suggestion and when you notice a difference share that with your family. For you - you need to...
  25. Mari
    Check out the Specific Carbohydrate Diet - it is good for IBS and Celiac Disease. Your Dr may not want you to go gluten free until he is finished with the tests. Let us know your lab results - get a copy from your DR.
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