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Mari

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Everything posted by Mari

  1. Mari
    I had elevated anti alpha gliadin antibodies (positive) but the anti ttg was not elevated (negative). From what I read there were 2 reasons for this result, one was that I had been eating very little gluten for several years and the other was that I had significant sprue indicating that most of my villi were damaged and in that case the anti ttg is sometimes...
  2. Mari
    People have described the gluten diet they have ben put on before the tests for up to 3 months. It is a moderate amount taken daily.
  3. Mari
    Any fluid that has food or fruit particles might result in choking when she is unconscious. Clear juice like apple or grape would be OK but turbid apple juice would not be OK.
  4. Mari
    Recently Wikipedia has added information about the HLA-DQ . Look at HLA-DQ for an overview then look at HLA-DQ1 and HLA-DQ2. Did she have the molecular analysis of the DNA alleles or did she have the serology test for the celiac antibody binding site on the antigen receptor cell? Could you write down the results as shown exactly on the report. What you...
  5. Mari
    Since it was such a small amount of gluten, my experience is that the symptoms clear up in a day or two so it is possible that something else is also going on. The most likely is that the hamburger contained a bacteria which caused the intestinal upset. Meat, and especially hamburger, must be cooked for at least 20 min to kill off bacteria and parasites....
  6. Mari

    ARCHIVED Igg Blood Tests

    Mari replied to tina a's topic in Coping with Celiac Disease

    I have had to cope with constipation for years and tho magnesium laxatives helped I found that herbal laxatives did the job - Cascara sangrada or Senna. magnesium laxatives only work in the large intestine while herbal laxatives are better at clearing out the small intestine. A normal person will have the urge to have a bowel movement within an hour after...
  7. Mari
    About 4 years ago I remember seeing messages from 2 people who had your combination of autoimmune problems. I searched for 'hemochromatosis celiac' - sone of the websites Celiac Disease and Liver Disorders Case histories show that iron overload and diagnosis of hereditary hemochromatosis often follows successful celiac treatment. Also, British patients...
  8. Mari
    One way to see if you can tolerate the supplements you bought would to put a small amount under your tongue. If no reaction add a little more each day until you can tolerate the whole dose. Muscle testing (applied reflexology) can be useful. Maybe you can find somebody to teach you how to do this. I use this sometimes before buying a supplement or prepared...
  9. Mari
    Recently I've been getting Vit b12 injections and have had a great improvement in intestinal problems. Usually Drs look at the size or volume of the red blood cells to have an idea of whether a person is deficient in B12 or folic acid. I read an article recently which showed that a B12 deficiency does not show enlarged rbcs for some time after the person...
  10. Mari
    Long before I went gluten-free I found that using loads of turmeric helped the kind of depression you described. I took capsules, make a paste and spread it on different foods, there are lots of recipes online for theraputic use. Later I started taking iodine drops after meals. These remedies both work if the depression is being caused by enteric bacteria...
  11. Mari
    Hi loey, I've been criticized for posting about some of the alternative methods which I have used and found helpful over the many years before being diagnosed with celiac disease. I did not try to treat by using one thing or another, instead was lucky to find a program which brought me back to being able to work and support myself. Along the way I learned...
  12. Mari
    The usual treatment for osteoporosis in Fosamax or related meds. It doesn't help and makes some Celiacs qite ill. What's recommended is Vit D3 and Calcium.
  13. Mari
    I've been using the SCD for about 2 years and it has been helpful. The book gave me a better understanding of the problems as I have both celiac disease and Leaky Gut Syndrome. I can add a few of the grains for a short time but then begin reacting again. People who suspect or know they have gall stones or bile insufficiency are warned not to use stevia. I...
  14. Mari
    By the time I was diagnosed at age 70 I had obvious sprue and in the last 5 years gluten-free the sprue has at times gotten better but it always returns. This may be due to inadvertant glutening but sometimes I cannot figure out the source of the contamination. The general health of my digestive system seems to be partly responsible, for when I get bacterial...
  15. Mari
    It sure seems that something about gluten is causing problems so it is either more tests or just staying gluten free and having modified french toast - Udi's brand bread would probably do ok in soaking up the eggs and it tastes good too. Until you make up your mind about what to do next it will probably help to go on a low carb diet, take a supplement to...
  16. Mari
    Final Laboratory Report Date: 11/9/2010 A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value HLA-DQB1 Molecular analysis, Allele 1 0301 HLA-DQB1 Molecular analysis, Allele 2 0604 Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6) My test from ELab were similar Allele 1 0302 (HLA-DQ8) Yours was DQ7. This is a subtype...
  17. Mari
    I also use strong mint tea. It is the intestinal bacteria causing the gas and bloating so you might try starving them by reducing the amount of carbohydrates in the diet, especially the grains and potatoes. I have found taking the spice turmeric (see recipes online) helps with irritability. If this continues you might ask your Dr to do some tests to identify...
  18. Mari
    There was a message about gluten withdrawal - some links below: Celiac Notes: Opiate Withdrawal from Gluten and Casein ... these symptoms should reinforce the need to exclude gluten from your diet. These are common symptoms of withdrawal of detoxification from gluten-derived opioid and brain ... www.corepsychblog.com/2007/08/24/celiac-notes-opiate...
  19. Mari
    You've gotten some good nutritional advice and hope it helps, but you may want to be tested for Lyme Disease which is common in Celiacs. If the bloating continues there are some good medical tests and treatments which cold help, some people have either a Metametrix enteric panel or a Diagnos Tech enteric and saliva panel to find out if you have organisms...
  20. Mari
    U cook allk meats and poultry throughly - usually buy roasts, cornish game hens, ground turkey and cut up then frozen. I add as much of that as I want to mixed vegetables, instead of grains I use winter squash. Dry beans can be cooked and frozen. Have you tried goat's milk kefir and cheeses?
  21. Mari
    When I am glutened the reaction occurs about 6 hrs later. If I get stomach irritation soon after eating it is a food sensitivity I tested neg, for a wheat allergy which seems to give some people more immediate problems than the autoimmune response. I became allergic to hot peppers rather suddenly - I had been picking up take-out Mexican after Farmers Markets...
  22. Mari
    These food restrictions are so difficult to deal with. For the past 30 years I've been meeting an old friend for a joint Birthday dinner , she lives 150 miles south and we usually meet somewhere inbetween. A few years ago there was one restaurant which served gluten free meals but they went out of business. I always have anxiety as the date approaches but...
  23. Mari
    Thanks to you all - I'll go check them out. Rosetapper - the Cal-Mag liquid may work for me, too, good suggestion. KatieB, Hope that I'm not next in line for B12 injections - hoping the increased stomach acids will help me enough to get the B12 from my foods. Twenty4 - I have seen that other Celiacs take TwinLab supplements.
  24. Mari
    Has the Dr tested you for Lyme Disease? Your Dr is right on to test for parasites. The US Center for Disease Control has been telling Drs for more than 5 years that parasites are more common than they had thought and this has spurred more research into parasite problems and diagnosis. However the usuall stool tests are very poor at finding them. New...
  25. Mari
    This website has some information about molds and yeasts altho it is commercial. Fungus Mold Yeast Infection Yeast infection symptoms include depression, fatigue, headaches, irritability, muscle pain, skin rash, respiratory, urinary problems, vaginitis. www.oxymega.com/yeast_infection.html
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