Jump to content

Mari

Advanced Members
 View Profile  See their activity

  • Posts

    323

  • Joined

  • Last visited

  • Days Won

    6

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Mari

  1. Mari
    Thanks for posting, I always am uplifted when people write about their successes and continue to find approproate ways to improve.
  2. Mari
    Both Boniva and Forteo are brand names for meds to treat post menopausal osteoporosis. I was advised to take Fosamax for my osteoporosis but when I read about it I saw that it is not the treatment needed by Celiacs and I have read in some messages that it makes some Celiacs quite ill. The best treatment for Celiacs is Calcium, Vitamin D and exercise. I have...
  3. Mari

    ARCHIVED Body Aches

    Mari replied to GFreeMO's topic in Coping with Celiac Disease

    My aches and pains, rigid cramping muscles improved on the gluten-free diet but I also had Lyme disease and my body was too acid instead of slightly alkaline. Since I have problems after taking antibiotics, for the Lyme infection I took homeopathic drops and used Hulda Clark's Zapper. The acidity I control with diet and eat more alkaline forming foods than...
  4. Mari
    Drs are required by law to provide copies of lab tests to patients. Most are very willing to do this.
  5. Mari
    I found this comment on a search for 'vitiligo celiac" Is Vitiligo hereditary? Or genetic? - Yahoo! Answers Resolved
  6. Mari
    I had a lot of confusion about the correlation between the genetic markers and the DQ serology tests. Finally I read the Wikipedia article about HLA-DQ and now I can figure out what the DNA assay means and what the serology results would be. With that overview you can go on to read about the different DQs and the subgroups, in your case HLA-DQ2.
  7. Mari
    I'd be interested in seeing your DNA marker results. There are some unusual combinations of the DQ gene that result in receptor sites which will bind small fragments of gliadin and intiate auto antibody production. It's possible that the molecular serology test offered by Prometheus Labs may give more information about the receptor site than the genetic tests...
  8. Mari
    I have read and experienced that celiacs have more skin problems than other people. I did a search for 'folliculitis cure' and this is one of the results How to Cure Folliculitis | eHow.com By Linda Hinkle
  9. Mari
    Like many celiacs you don't seem to have allgeries to wheat and associated grains. Celiac Disease tho it involves the immune system is not an allergic response in the same way that an allergy is. I have seen celiac disease referred to as a delayed allergic or immune response but the process is different. It is possible that if you did not do a wheat and rye...
  10. Mari
    I'm a DQ8 (a subgroup of DQ3 and main celiac gene) and a DQ6 ( a subgroup of DQ1 and predisposes for non-celiac sprue) This combination results in a worse celiac response. Gluten, actually fragments of gliadin a gluten protein, start off the celiac autoimmune reaction in DQ8 people and in DQ6 people the gluten flattens villi in the small intestine causing...
  11. Mari
    There are several online labs that offer genetic testing. I used www.enterolab.com. If she does not have the genetic markers there is only a slight chance that she could have autoimmune Celiac Disease. These tests can also rule out a problem with non-celiac sprue. Another test would be the molecular serology test offered by Prometheus Labs and others....
  12. Mari
    Long before I was diagnosed with Celiac Disease I started using alternative methods of healing. I would never suggest that you stop seeing physicians, these self treatments sometimes need to be monitered. I just want to say that many people have been able to improve their brain fog and digestive issues by doing a variety of cleanses and detoxifications. These...
  13. Mari
    Imbalances and overgrowths of microorganisms in the intestine feed on the food eaten and produce the gas. This is referred to as Dysbiosis and can be caused by bacteria, yeasts and even parasites. Some celiacs seem to be able to normalize the bowel flora and this gets better over time. But many of us need to either work with Drs to correct this problem or...
  14. Mari
    Hi, I have an allergy to cow's milk and even after strictly avoiding all cow's milk and butter for at least ten years still tested positive and react. Like the other person I could tolerate goat's milk for a while but had to stop eating it. I can tolerate small amounts of sheeps milk yogurt so have some every once in a while. For some people with milk allergy...
  15. Mari
    Hi Joe - One of the situations which changes is the mixture of microorgansims in our intestines. The bad smell and gas are the result of microorganisms digesting the food we eat. If we are producing sufficient pancreatic enzymes and digesting food well then the bacteria and yeasts don't have that source of nutrients to grow on so some people take pancreatic...
  16. Mari
    Mushroom's comments offer good advice. I wanted to add that constipation was always a problem and I didn't get D uless it was food poisoning or bad food. I have been gluten-free for 5 years and have finally started to gain back some weight. Also now when I eat something with even a trace of gluten or some food I'm allergic to I develop D or loose bowel...
  17. Mari
    I answered yes because I don't tolerate either. Can't remember the problems I had with psyllium it was so long ago but took flax seed meal for a year or so and since I stopped don't get swollen throat and difficulty swallowing only rarely so it might be an allergy.
  18. Mari
    Blood liver enzymes are elevated when the liver cells are being damaged or destroyed. The Dr will do a series of tests to uncover the causes. I have not read that gluten by itself can cause this problem but many celiacs have elevated liver enzymes before going gluten-free. If this were me I would also have the tests to rule out a virus or pollutants causing...
  19. Mari
    I live alone but thought I would reply as keeping gluten-free is one of my major preoccupations. It seems to me you are aware of most of what you need to do and are doing it very well. Are you having some symptoms that you think are caused by gluten? If not, then from what I have read, occasional ingestion of very small amounts of gluten won't usually raise...
  20. Mari
    when I worked in labs it was not unusual to find a unexpected low hemoglobin. The Drs sometimes miss this. One time I noticed a thin looking blood sample and did the hemoglobin even tho it had not been ordered. I called the Dr and it turned out to be his mother-in-law, he was very grateful. I searched for 'premarin bleeding' and got lots of websites....
  21. Mari
    Ask your Dr to order a test for Lyme Disease which is common in Celiacs. And ask for tests to see if you have low vitamin levels - especially Vit D and Vit B12. The Dr I see did not know to order these tests and I became very weak and tired and obviously sick before she would order them. The Vits were low and the Lyme test was positive.
  22. Mari
    I have read that reflux problems are common in Celiacs and recently read an article where a Dr actually referred to celiac disease as a reflux disease. Some Drs may tell you that you have swallowed air and are burping it back out, especially if you are a smoker. But it is more likely since you are burping bad smalling gas after eating eggs that you have some...
  23. Mari
    You may want to look at The Gluten Syndrome Website for an overview of problems that gluten causes. When my test came back with confusing results I ordered the Genetic Marker (DNA) test and found that I had one main Celiac gene and another gene which made the celiac worse. Another test some Drs prefer is the molecular serology test offered by Prometheus Labs...
  24. Mari
    Oh yes. I had to give up my job working in medical laboratories, had to give up my PhD program because I was too tired to continue, eventually moved to a rural area to avoid the pollution, started becoming a successful sculptor but had to give that up because of increasing brain fog and confustion. Started a plant nursery and minifarm so I could work outside...
  25. Mari
    Recently I was having a lot of bloating and wind and none of my usual remedies helped very much. I happened to have some dried hoarhound in a jar and looked up what it is good for. It is a mild laxative besides being good for lung congestion although it may have some hypoglycemic effect, other than that it seemed quite safe to use. And it is also a paracide...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.