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Mari

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Everything posted by Mari

  1. Mari
    I would probably ask a Dr to do a urinalysis and culture to rule out a silent urinary tract infection and a test to rule out diabetes if I had not been tested recently. It seems seems possible also that your body is storing too much water as you are resting and when you become more active it is excreted by your kidneys. There is usually a small weight loss...
  2. Mari
    Most of us who choose to not have surgery for bile system dysfunction and congestion are able to improve or eliminate the congestion by doing programs that have Liver/Gallbladder Flushes. There are several Liver Flush Support Forums online. Most of the programs advise parasite programs, a method of softening or dissolving hard calcium stones followed by...
  3. Mari
    I would go thru that cycle and still do sometimes. Stomach Acid levels decline with age and affect the adsorbtion of Vit B12. Has your Dr ordered the test for B12 and Folic Acid levels? Some people need injections of B12 to keep their levels up. I used sublingual 1000 mg B12, B6 and Niacin but found it disagreed with me so took the injections for a month...
  4. Mari
    I just saw your message, hope you are still checking back. I would buy a small rice cooker and if possible take along a bag of gluten free rice. Baked potatoes and yams in the skin will be OK. Millet and buckwheat may be available. Disposable dishes/plates/eating utensils. I you have some specific concerns just ask. I have a niece who has spent 2 summers...
  5. Mari
    I was having the same problems with foods when I was diagnosed. It has taken a while to add foods back to my diet. It helped to follow the online SCD diet. Bananas give me stomach aches but now I eat a lot of them. They have to be very ripe, no green, lots of brown spots. I can peel them, dip them in Vit C or lemon water and freeze them in small bags for...
  6. Mari
    Over about a 10 year period my weight went from about 140 lbs to less than 100 lbs. 5 years gluten and cow dairy free I'm still trying to get back up to 120 lbs, a good weight for my age. I have gained a few lbs but then lost it when I was glutened or developed intestinal overgrowths of yeasts and bacteria. Right now I'm able to eat more but have not added...
  7. Mari
    If you have an allergy to cow's milk you will probably react. It may take a few days or longer of eating milk products to raise the antibody levels enough to cause the reaction. Some celiacs can tolerate home made cows milk yogurt, digested over night, as the casein is digested. Many people use goats milk products, I like goat milk kefir. Commercial yogurts...
  8. Mari

    ARCHIVED My Introduction

    Mari replied to Sammyj's topic in Coping with Celiac Disease

    There is a panel of tests that need to be done when a celiac is diagnosed or suspected of being gluten sensitive. I've seen the list online - some of the tests are Vit D, B12, folic acid, thyroid tests and more. I would have really benefited from these tests but the Dr refused to order them and waited until I developed worse problems. I did get her to order...
  9. Mari
    When I was an undiagnosed celiac most of my eyelashes fell out, really upsetting - I was quite proud of my long dark lashes. Over time most of my body hair fell out too tho the hair on my head only thinned a little. I have grown back some of my body hair. I read about a 12 year old boy who was completely bald who's hair all came back on a gluten-free diet...
  10. Mari
    You have gotten lots of comments but thought I'd add a few of my own. Most tests for parasites are not very good. You might want to look at some of the herbal preparations with with instructions for small children. The tummy bug problem - I have used several common spices - turmeric is very helpful when lots of it is eaten either in capsules or in...
  11. Mari
    I had confusing lab tests but felt better off gluten foods so had the DNA genetic marker tests done. I carry a main celiac marker/gene . Since these markers are inherited it may help your relatives decide if they need to be gluten free.
  12. Mari
    You did have a test for autoantibodies to gluten Fecal Anti-gliadin IgA 108 Units (Normal Range is less than 10 Units) Gliadin is one of the proteins in gluten. Fragments of gliadin start off the production of antibodies. Your results are quite high. I think this would mean that you have an allergy to wheat and also have non-celiac sprue but do not have...
  13. Mari
    This report confuses me as I don't see exactly what your results are. Is this right: GLIADIN IGA, DEAMIDATED 4 0 GLIADIN IGG, DEAMIDATED 3 0 TRANSGLUT IGA <2 0 TOTAL IGA (LCA) 171 70 - 400 mg/dL These tests only give information about autoimmune gluten sensitivity. The other types of gluten sensitivity are wheat and related grain allergy and...
  14. Mari
    Get the actual lab report from your Dr and post here with the normal range. I did a search but couldnt find any results for ITG. I also did not find a normal range for tTG but several people on this forum has reported their results and the 359 seems high to me. The tTG is a screening test and gives 20 to 30% false negatives. Doing a gluten challange diet...
  15. Mari
    It would be helpful if you posted your test results, just get a copy from your Dr. A positive test shows that you have elevated autoimmune antibodies so you are sensitive to gluten. Since the small intestine is 28 ft. long it's very likely the biopsy missed the area that was damaged. Even the multiple biopsies will miss damaged areas. If you are still uncertain...
  16. Mari
    I have found the Wikipedia articles easiest to understand search for HLA-DQ). The genetic marker tests - HLA-DQ reports list the results as the marker numbers. www.Enterolab.com only gives the results for the HLA-DQ B but other labs report the marker number of the HLA-DQ A and B. The A and B are subunits or alleles of the HLA DQ gene. We inherit one DQ gene...
  17. Mari
    I cannot tolerate many brands of probiotics as they contain traces of cow's milk and I'm allergic. Some probiotics also contain mold toxins and people sensitive to yeasts and molds can't take them. I can usually smell a musty or yeasty odor so don't take them and notify the manufacturer.
  18. Mari
    Years ago I had 2 6 hr glucose tolerance tests, both with flat curves. I had Celiac Disease and maladsorbtion then too but undiagnosed for many years. My brother is a Type 1 diabetic and my father had Type 2.
  19. Mari
    I'll be interested in seeing how the rest of your tests turn out. You may needdo a longer gluten challange to demonstrate elevated autoantibodies if you have been gluten-free for a while. Read up on how the skin biopsy is taken as some Drs dont take the sample from the wrong place.
  20. Mari
    Welcome To PPA Physician's Plasma Alliance is made up of healthcare professionals collecting and distributing specialized blood/plasma and other biological products throughout the world www.physiciansplasma.com Follow the link to find out all the diseases they are interested in and more information. I have not written them to ask what the plasma will...
  21. Mari
    You may be able to find a Yoga instructor who works with pain problems. Have you been tested for Lyme Disease?
  22. Mari
    I had the genetic marker assay at Enterolab in 2006, the cost was about $200. www.enterolab.com has a price list on the website.
  23. Mari
    I think you can trust the feeling that you are doing better on the gluten-free diet. As you get better it will be easier to trust yourself as you begin to achieve a feeling of inner health and strength. This has happened to me and I have a lot easier time with relationships. I have relaxed and now when I smile it is a real and warm smile and people respond...
  24. Mari
    The experts tell us that a person should have a bowel movement within an hour after eating, so that's 3 bms a day for most people. This helps us flush out the bowel and reduce the amount of toxins that can be adsorbed into the body. It is also likely that the swelling and inflammation in the small intestine has decreased so that your bile system is now able...
  25. Mari
    I read in the Celiac.com newsletter a while back that researchers are developing a new test for celiac disease that only has a short gluten challange time, I think it was about 5 days. After the challange a blood sample is drawn and tested with a dye to count the number of the antibody producing cells.
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