One year in

[James47]

Hello everyone and I hope you are all doing well,so I'm a year in after my diagnosis last year and I was 48 at the time so I went a long time undiagnosed,what iv noticed this year is my body is very achy.like most of the time, nothing that would keep me off work but it's constant almost and was just wondering if anyone else suffers from this?

 

James 

[knitty kitty]

Hello, @James47,

I found supplementing with essential vitamins and minerals improved my health.  The gluten free diet can be low in some nutrients.  Taking vitamins improves absorption.

 

Micronutrients Dietary Supplementation Advices for Celiac Patients on Long-Term Gluten-Free Diet with Good Compliance: A Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6681258/

[Mari]

Hi James,

Good to see you here asking a question.

Your body is signaling to you that it has a  problem that was not corrected by a gluten-free diet. You may have had this problem before you went gluten-free but you probably  had more problems  from being gluten intolerant and did not notice this other, more general problem in the background. It would be reasonable for you to go back to your health provider and insist that they do the tests that would identify the cause. You may have had some of these tests but your body has changed so some of these tests might need to be done again. There are so many underlying causes of achy body that it needs to be investigated because some of them progress to becoming more serious if not treated. 

When I was in my late 40s I had achy muscles and tiredness  for more than 5 years. I lived in a rurlal area in Northern California and had had several tick bites. Although the test for Lyme Disease was negative The local clinic treated me with an antibiotic, Tetracycline. The achiness went away but came back a while later. I took the antibiotic 3 times over the next several years. When the achiness came back again and I was offered a longer course of treatment with a mixture of antibiotics I chose a different course that other people in the area were using and the achy muscles did not come back More than 20 years later I found out that I have Celiac Disease. I developed an inflammation in my knee and received a cortisone shot. The test for Lyme Disease finally showed a strong positive. 

The problem that I had and the problem you have may not be the same. You have yet to find out if you need some treatment or just supplementation or if you need to do anything at all. 

[Scott Adams]

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

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