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How Can You Tell If Gluten-Free Diet Is Helping?


confusediniowa

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confusediniowa Newbie

My backstory: I have had symptoms of celiac on and off for 20 years and was diagnosed with IBS in my early 20's. I was able to manage gut issues ok with careful diet, etc. This spring I fractured my arm and found I am B12 and D deficient and have osteopenia (pre-osteoporesis). I got a negative blood test for celiac but know that isn't conclusive so decided to try gluten-free diet. My main question is how will I know if it helping to be off gluten? I have only done gluten-free diet a few days but I am not feeling much different. I am willing to do this for a while but not sure how I will know if it is helping. My main symptoms now are the nutritional deficiencies and the low bone density. IN the past I have had severe cramping, bloating, diarrhea and multiple miscarriages. I avoid foods that I figured out caused problems (raw cabbage, unfiltered coffee, high dairy fat)- should I re-introduce them after a month and see if I can tolerate it better?

thanks in advance for help


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    • ThomasA55
      Does my iron loss sound like celiac to you?
    • trents
      Being as how you are largely asymptomatic, I would certainly advise undertaking a gluten challenge in order to get formal testing for celiac disease. We have many forum participants who become violently ill when they undertake a gluten challenge and they therefore can't carry through with it. That doesn't seem to be the case with you. The reason I think it is important for you to get tested is that many or most people who don't have a formal diagnosis find it difficult to be consistent with the gluten-free diet. They find ways to rationalize that their symptoms are due to something other than celiac disease . . . especially when it becomes socially limiting.  The other factor here is by being inconsistent with the gluten free diet, assuming you do have celiac disease, you are likely causing slow, incremental damage to your gut, even though you are largely asymptomatic. It can take years for that damage to get to the point where it results in spinoff health problems. Concerning genetic testing, it can't be used for diagnosis, at least not definitively. Somewhere between 30 and 40% of the general population will have one or both of the two genes known to be associated with the development of active celiac disease. Yet, only about 1% of the general population will develop active celiac disease. But the genetic testing can be used as a rule out for celiac disease if you don't have either gene. But even so, that doesn't eliminate the possibility of having NCGS (Non Celiac Gluten Sensitivity).
    • ThomasA55
    • trents
      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
    • Joseph01
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