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Advice, Questions, And Coping

RahCreature

By RahCreature
in Coping with Celiac Disease

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RahCreature Newbie
RahCreature
Posted

I have been reading about how people are leary of oats or not to eat oats like quaker etc.

Is this a popular thing? I eat Quaker oats with no problems I have never encountered an intolerance to oats My mother who also has Celiac's chasties me for eating things like fruity/ Coco Pebbles, Lucky Charms, And a few other main stream cereals that are not "Gluten free" But have no wheat products in them and are not processed in a plant that has wheat. I look on labels and I figure if I get sick that is a lesson learned and I never eat that again.

I have not been posting long but I can offer advice to the several newly Dx'ed people, read your labels yea yeah all natural, organic might be better but lets be real here we do not all have the $ to pay 4 bucks for a itty bitty box of cereal. Gluten free bread is a treat because of it's 6 bucks a loaf price same with donuts or muffins I like them but I tend to go without rather than pay the prices. Also New people beware the processed Glutne Free food also have lots of sugar and more fat to make up for the lack of wheat.

When I first went gluten-free I ate like a racehorse. Snickers and peanut butter filled me up along with milk and other thicker protiens it did go away but it was frustrating while it was happening. If you have multiple problems or allergies it can be tough as well I have ABSOLUTELY no natural metobolism becasue of my 2 other issues so it is a battle so hang in there =) it gets kinda better =)

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ravenwoodglass Mentor
ravenwoodglass
Posted

You do know you need to avoid barley malt not just wheat right? That is in a lot of mainstream cereals. Chex makes gluten free cereals that are safe for us. I think the Fruity and Cocoa Pebbles are also gluten free.

Were you diagnosed with a blood test? If so be sure to get rechecks to make sure the antibodies are going down. It isn't just GI discomfort as far as reactions go, celiac antibodies can also effect the brain and many other organs. You want to make sure to stop that antibody action. No one says you have to eat just organic food you just have to avoid gluten, wheat, rye, barley and for some of us oats. The issue with mainstream oats is that they are usually heavily cross contaminated in the processing but certified gluten free oats are tolerated by some of us.

RahCreature Newbie
RahCreature
Posted
  • Author

Yes I realize I was Dx With a blood test and a Biopsy I have it I've had it for a year. and nothing in any of the cereals I eat have any trigger ingredients. I've had to play the watch my food game since I was 14.

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    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you so much.
    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

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    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thanks @Scott Adams! I guess my question now is: do the celiacs who can get away with regular contamination without villi damage as you mentioned have to be strict about cross-contamination ? 
    • Zuma888
      Hypothetical question about antibodies

      By Zuma888 · Posted

      Thank you very much @knitty kitty! I'm glad you brought up the point about histamine. I have been taking an antihistamine after meals where I don't feel so good and never knew why it helped so much. At first I thought I might have a food allergy, but I recently did a food allergy test and I actually have ZERO food allergies. Regarding your last point about the stages of grief, are you saying it's likely that I have celiac? I have Hashimoto's BTW and I know for sure that gluten causes an autoimmune response to my thyroid as my anti-TPO and anti-Tg go up and my throat feels swollen. Could the symptoms be due to that autoimmune response?
    • knitty kitty
      Hypothetical question about antibodies

      By knitty kitty · Posted

      @Zuma888, The antibodies produced in response to gluten are made in the intestines.  When the body is provoked sufficiently, the antibodies overflow out of the intestines and into the blood stream.  Once in the blood stream, the antibodies can be measured with tTg IgA tests.  Three grams of gluten per day for two weeks minimum is enough gluten to make you feel the symptoms of having been glutened, but the antibodies are not in sufficient quantity to be measured in the blood. Ten grams of gluten per day for a minimum of two weeks is required to get the anti gluten antibodies at a high enough level in the blood stream to be measured by tTg IgA tests. So, no, occasional cross contamination or (heaven forbid) intentional cheat days will not be sufficient for tTg IgA testing.  You will still be making antibodies which will still be causing inflammation and damage to the intestines and body.  Histamine is released as part of the immune response to gluten.  High histamine levels lead to food sensitivities, brain fog, and body aches.   The damage done to the gastrointestinal tract affects the absorption of essential vitamins and minerals.  Malabsorption of fats can cause changes in stools.  Insufficient absorption of vitamins and minerals can cause damage to other organs like the thyroid if it can't get enough Selenium, iodine, iron, zinc, and Thiamine.  Brain fog and fatigue can be caused by low Thiamine and other B Complex vitamins.  Vitamin D is needed to regulate the immune system.  One gene is all that's needed to develop Celiac disease.  I know a Celiac diagnosis is a change that can be difficult to get your head around.  Many people go through the five stages of grief.  One stage is "bargaining".  Sounds like you're stuck there.  Every little cheat counts to your detriment.  But sticking to a gluten free diet, makes every meal a success.   Read the comments below the article... Best wishes!  Keep us posted on your progress!
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