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Untested Severe Symtoms


Pokerpro

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I am 27 and up till mid 2007 I was actually really healthy, this is when everything went wrong all the sudden 1 day had severe diarrhea, and milk seemed to really make the diarrhea worse.. so basically i went from almost never using the toilet at work for years to having diarrhea after every meal :(... I also began to get hot pretty easy and i remember in the summer i actually turned the AC on colder temp against my bosses word... During these days at work i was eating wheat bread at subway bout everyday with cheese, which i soon cut out the cheese, cause my reaction to milk from mc d's in morns... I ended up quitting in Jan 2008 and ive been droppin weight slowly since, with a high heart rate...

For awhile i thought the diarrhea was a lactose prob or stress, so i cut out cheese since then but been eating everything else and also smoking weed from my chronic pain i have (for a birth bone deformity). I recently quit any type of drug in order to take my online poker to the next level since its the only way ive been makin money lately, and Ive really noticed i have a severe problem and im sure which has been part of the reason i ended up in ER panicking.. The third time in the ER 1 doc actually gave me alot more time as far as talking to me i think he actually wanted to truly help me as the others were only worried about my possibly dieing at the moment, and sent me out, he mentioned he next time you see your doctor have him test you for "CELIAC DISEASE",

Since then i have been on trader joes diet gluten free for about 7 days now, and I have no blood test for celiac.. But my stools seem to be little nicer then I have seen in like 4 years, but i still been consuming lactaid milk and some think thin bars that contain soy and milk and i get gas from them, so i guess my next step is removing all dairy?


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      Welcome to the celiac.com community, @ThomasA55! Before I give my opinion on your question about whether or not you should undergo a gluten challenge, I would like to know how you react when you get a good dose of gluten? Are you largely asymptomatic or do you experience significant illness such as nausea and diarrhea? You mentioned intermittent joint pain before you began experimenting with a low gluten diet. Anything else?
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      This is way past due for your post.  I have Celiac and have been recovering for more than a year.  Doing well.  Used Essential oil to day to fry some chicken.  Read the label all good.  Then ate some chicken.  Here comes the gluten reaction.  I haven't had a gluten reaction since year.  I am angry.   I have been so careful with this crap and don't wan't any set backs!!!!! Good luck to you with your post.   Celiac is HELL!
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      Hey everyone. I'm a young adult who had very high iron in 2024. 64% saturation 160 ferritin. In 2025 I had far lower iron. 26% saturation and 130 ferritin. I know this is still in range but it seems to be a large drop. That combined with the fact that I developed some intermittent joint pain between the two years makes me wonder if I could be celiac. My dietary intake of iron was pretty steady (mostly in the form of red meat). I did carnivore (therby eliminating gluten) for a bit after the second test and felt improvements in my joints and digestion. I still consume gluten occasionally socially, for religious reasons, and through cross contamination/food sharing. For these reasons, I would need to know if I had it, because although my lifestyle is low gluten its not at the strict level it should be if it turned out I was celiac. I will get a gene test first and hope I don't have DQ2.5,DQ2.2, or DQ8, but if I had any combination of those do you guys think I need proper screening through a gluten challenge / blood test? Other context. From 2024-2025, my b12 stayed about the same in the mid 600s folate went up slightly, but I heard it takes longer for celiac to affect the absorption of these. ANA negative, CRP low, ESR low.  I don't know how much noise exists around the saturation and ferritin, but it caught my eye and Celiac seemed like a possibility. I'm under no illusion that it is probable that I have celiac, only that it may be worth screening given my overall profile.   
    • Aretaeus Cappadocia
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