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Susie0402

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Everything posted by Susie0402

  1. Susie0402
    Since my Celiac diagnosis 3 years ago, I've been to a Pulmonologist, dermatologist and the dreaded PCP. He refers me to either the NP or my GI who is hard to get an appointment with. My husband died during all this and the anxiety and stress I understand can't be good for celiac disease. I see a therapist who is wonderful but I don't want to be on an antidepressant...
  2. Susie0402
    I had endoscopy Wednesday and the GI guy told me my villi are flat and unhealthy. I have totally eliminated gluten from my diet and followed his directives at all times. I was diagnosed with celiac disease in March, 2020. That was when the pandemic began. My husband died later on in the year. I had the endoscopy due to chronic diarrhea issues. My brother...
  3. Susie0402
    I have remained gluten free since March 17, 2020, the day I was diagnosed with celiac. Since that day, I have added glulten free bagels, bread, cookies and feel miserable. At night I'll grab a handful of mostly gluten-free cookies. Pre-diagnosis, cookies, bread, bagels were just not in my list of foods. So what has changed during these past 15 months...
  4. Susie0402
    I was diagnosed with celiac in March 2020 and have been following a gluten free diet. I am cold all the time wearing many layers of clothes. I don't know if it is because my husband died in December 2020 and I am incredibly sad or because of the pandemic....amie I not moving around as much as I did before??? It is almost the end of April and I continue...
  5. Susie0402
    Renee, so sorry to read this. Unless you have been diagnosed with celiac you just don't know. Sorry she is being disrespectful to you. Susie
  6. Susie0402

    Cold All The Time

    Is anyone with celiac cold all the time?  I'm not just cold in hands and feet but my entire core is cold and I'm shivering often.  I wear layers and layers of sweaters and sweatshirts.  The doc raised my thyroid meds but that was weeks ago and it has not helped.

  7. Susie0402
    Trents, I have eliminated gluten from my diet the day in March, 2020 that I was diagnosed. My family and friends had been so excited about the availability of the vaccine that I signed up and I got the Pfizer. Eating and food occasions are just not the same to me since the celiac diagnosis. I'm not feeling great but it could be the stress of life. I...
  8. Susie0402
    I've had celiac disease for one year. I am exhausted all the time and have added water to my everyday diet. Coffee was a big addiction and now I have 2 cups. Metamucil has been fabulous in keeping me regular. The NP in my GI doctor's office suggested this and it works like a charm. I've had both shots (Pfizer) and after 5 days for both shots, I got very...
  9. Susie0402
    Thank you for all this information. I was diagnosed with celiac disease in March 2020, one year ago, my husband lived in a nursing home due to a fall and I had not seen him in 9 months. My diarrhea returned in the fall, my husband died at Christmas. I am remaining gluten free but am still having the gut problems, anxiety and tiredness. I have a doctor...
  10. Susie0402
    I received the Pfizer vaccine last Saturday. It's a 21 day wait until I get the second one. I was just diagnosed with Celiac March 17, 2020 and my hubby died in December, 2020. It's been a year.
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