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About chiroptera

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  1. chiroptera

    New Here

    Soy milk isn't dairy. There is also rice milk, almond milk and even coconut milk. The other thing I did want to mention is that sometimes people who can't eat gluten are also casein intolerant. That is different than "just" dairy intolerant. Dairy (or lactose) intolerant refers to one part of the dairy, casein refers to the milk protein in dairy. So, even soy and rice cheese has casein. Yes, it is very very confusing at first! Maybe the two weeks she is home, you could just take her off dairy (and try things like soy milk/yogurt, etc) and see if that helps. If not, she may also be casein intolerant (my twin daughters are as well as gluten intolerant/celiac). I had to learn all of this myself too. This is a GREAT place to learn and to get help Also, while I totally agree about limiting the gluen free processed foods, I found that with my kids, I did have to balance that with them wanting to eat treats like everyone else. It's one thing for an adult to just eat the basics, but for children, you don't want them to feel deprived. And if you go with the goodies marked gluten free on the box you should be fine. All kids like a cookie in their lunch, kwim? Good luck! Btw, one of my twin daughters was vomiting constantly right before we took her off gluten. It did take a few months for her to not feel like she was going to throw up. Sometimes it does take time but the good news is children usually heal much faster than adults. Happy Holidays!!!
  2. chiroptera

    Pizza Parties At School

    Amy's brand makes many gluten free pizzas. Some are even dairy free. They make small ones that cost $4.99 at our stores here. Could you buy one of those and make it? I have made in in the morning, cut up and wrapped in tin foil and put in a thermos. It may not look pretty but they are good and certainly better than getting sick.
  3. Hello. Do any of you or your children happen to get a red rash around the mouth (but not the actual lips; more of like a ring around the lips) and/or have earlobes or the whole outside ear that turns bright red after eating gluten? We think our son does when he has gluten (which is not intentional) but are also thinking it may be related to blue dye 1. thanks.
  4. Definitely! Migraines were one of my daughters main Celiac symptoms!
  5. It just dawned on us that perhaps our George Foreman Grill is probably contaminated from all our gluten eating years? What do you think? thanks.
  6. chiroptera

    My Heart Is Breaking

    Sorry to be Debbie Downer here but just pulled our twin daughters out of school due to issues........I am homeschooling them now........
  7. WOW Sounds like a "big episode" I had in the Spring, about 2 months before going gluten free. I had been standing for about an hour ironing, stopped, called my mom on the phone (as I was still standing) and all of a sudden I told her, OMG, I feel like I'm falling, I AM, and I gently fell to the floor on my left side all the while talking. I never ever passed out, just fell over. Of course she flipped out, came flying over to my house and by that time ( about 5 mins) I"m sitting up worried my 4 year old is playing with scissors or eating dog food So I called my doctor's office and they talked to me about low blood pressure, low blood sugar (both of which can lead to problems.) I spent months using a glucose monitor and my numbers were never that bad ( high or low). Now I do have real low blood pressure. My doctor explained that sometimes when you stand for long periods ( or sit a certain way without moving your legs much ) blood can pull in "one spot" or something of that nature and you fall over. She was not very concerned as I am 100 percent I did not black out!! I know that there is a condition called Orthostotic Hypotension where you just can't stand long. Don't know if you are familiar with The Wiggles, kid performances, but if so, that's why Greg (yellow shirt cute one) left. I really think I had/have that BUT (and your post really got me thinking) I have NOT had ANY issues since going gluten free in June. Very Interesting! OH, also sometimes your sodium can get too low and I have this tendency and that can cause issues as well......my doctor since I have low blood pressure it is very important to eat salt, esp if I crave it. Total opposite of what most people are told I know. Good Luck! It is a very scary feeling, at least it was for me. And sometimes I would feel like that while I was driving and would have to pull over.
  8. chiroptera

    Completely, Completely Overwhelmed :-(

    First of all, you are NOT complaining! You have been in pain of different types this whole year. That just isn't good no matter how you look at it or what is happening to other people, should they be nice things or worse things. One thing I have learned (and I've had some really really bad years, this being one) is that what happens to other people truly shouldn't effect how we feel about ourselves. Meaning that, just because you haven't had "The Worse" happen, you have had trauma, you don't feel well and for you, you have had it rough. So don't beat yourself up about feeling frustrated, okay? Two, you have a really great boyfriend, but you already know that! And three, FEEL BETTER!!!!! Seems everyone has times where things hit them all at once, (again for me now) but in the end, it will work out! Now go take a nap!!!
  9. chiroptera

    Behaviour Suggestions

    OH, If your hospital has special trained social workers then I definitely would ask for their help! That is great!!!
  10. chiroptera

    The Chex Issue

    Yes, we seem to do fine with the Rice and Corn Chex, but get sick from the flavored ones as well. All four of us (me and my kids).
  11. chiroptera

    Behaviour Suggestions

    Well, I certainly am NOT trying to disagree with the pp who suggested getting a social worker, but please be careful with that because one, they made "invade your territory and read too much into this" and two, betcha they will have no experience with gluten moods. Our five year old does the same thing. We know we are in trouble and storms a brewing when his outer ears turn red and he boom, get the red rash ring around his mouth. Then, the tantrums begin, bad. Since he only five, he is small enough for myself or my husband to hold tightly (not, "that" tight but enough to restrain him comfortably) in a big hug to help him calm down. I try to deviate his attention with pretty much anything, even if it means packing the whole family outside to play or go to the park. That usually helps although it's not realistic to do, say at ten at night. I also try to give him extra fluids of whatever he will drink. I know that probably doesn't make a difference in getting those darn gluten molecules out of his system but it makes me feel like I'm doing something. The tantrums are very hard to handle for us, too. Our nine year old gluten-free daughters have more "mood swings" with an attitude and get mean, mouthy and hard to get along with, but they don't physically tantrum like they used too. Good luck to you!!!!
  12. chiroptera

    Side Effect Or True Reaction From Flu Shot?

    Thank you so much for your feedback! Every year I call the doctors and since their bday is in November and often their thighs are still a mess and I just hear "oh, just give them some motrin and put some ice on it." I feel better knowing that my family and I are not the only ones thinking their may be another issue involved. I had one of my twins tested for intolerances as part of the gluten free issue and she came back also egg and casein intolerant. When I stopped those foods all her migraines, GERD and digestive issues went away (along with going gluten free).
  13. All this talk about shots made me think this would be a good place to ask this question: A little background: My twin daughters never got the flu vaccine until 2003 when they were 4 years old. EVERY singe year they get it (and we haven't yet because one, our doctor didn't get it and two, we may be dealing with an antibiotic allergy and one of them has to complete allergy testing in December before they may be able to get the flu and three, I'm not so sure I want them or their brother to have either vaccine), they get severe, I mean entire upper thigh swelling, flaming redness and then entire upper thigh bruising that last for two to three months). There have been times we get the shots around Halloween and even in February their legs are still bruised and tender. Do any of you or your children have this kind of site reaction? They have also gotten the side effects listed like a mild fever, etc but not very badly. They are identical twins and their brother who is now 5 has gotten the flu shot since he was eligible at I think 6 months but he has no site reactions or had any side effects that we could ever tell. Now I'm really wondering..............Thanks so much for any information/experiences!!!
  14. After you get glutened (or glutenated as my 5 year old says when I look pregnant)? I am specifically talking about the upper stomach under the ribs big bloated when you are far along in pregnancy not the "gotta go now" lower abdomenal bloat....... thanks! Mine seems to last a really long time, like a week or more and I am trying to figure out if I'm getting addl gluten somewhere or it's typical.....
  15. chiroptera

    My Elimination Diet

    Hey there just wanted to mention a quick thing: as explained in the book I mentioned, sometimes you may feel not better but that may not mean your new diet isn't working! Very impt to know and is in the book. I never knew that either but with an elimination diet there are various timelines for feeling better, worse, or the same. HTH