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BlessedMommy

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BlessedMommy last won the day on March 28 2015

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  1. Welcome to the club! We should have a sub forum here called "Strictly Gluten free Without a Diagnosis." LOL!

     

    I won't do a gluten challenge ever again, because the neurological implications are too scary, so I live a celiac lifestyle and am getting to the point where I'm fairly comfortable with that.

     

    I wish that it had been possible to get a DX, but you know what, I feel 100x better off of gluten. Some of my gluten issues were very obvious (severe skin rash) and most people who remember that, can understand why I care about being strict. Those who don't remember that, will usually know about the TIA I had from the headaches while on gluten. I knew 100% that after having the TIA, I would never go back to gluten despite what any lab tests told me. Positive, negative, inconclusive, it wouldn't really matter. So I'm happy and healthy and at the end of the day, that's more important than a diagnosis.

     

    Most of the time an adult can get by without a diagnosis. I've been in the hospital since going gluten free (had to go with my son to the children's hospital for a femur fracture) and they happily let us eat off their wonderful gluten free menu, no requirement to be celiac to eat from it.

     

    And your gluten challenge wasn't for nothing! Now that you have gone through it, you know firsthand what gluten does to you and can be motivated to be strict in your diet.

     

    Hang in there! Everything will be fine. 

  2. Could you just tell her not to worry about it and bring small portions of turkey, etc. precooked for you and the boys? It does sound stressful and it doesn't sound like she totally understands things.

     

    I know that it's extra hard with multiple people eating gluten free. For just myself, though, I just make up something in these portable pyrex containers and haul it along. Open Original Shared Link

  3. So read each label every time you buy something, PLEASE, because relying on a company's gluten-free claim could well get you into trouble.

     

     

     

    Yes. 

     

    There are some chips at Aldi's labelled "naturally gluten free food." My friends bought them and offered them to me, but I passed. The reason? They had oat fiber in them and I'm pretty sure that an Aldi's brand wouldn't have certified gluten free oats.

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