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About carsondcat

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  1. carsondcat

    How Big Is This Iceberg ?

    It's called an iceberg because no-one knows how many undiagnosed Celiacs there are. Celiacs is on the rise because as more people become aware of it, more people are getting themselves tested for it, because the symptoms of Celiac Disease hits a chord with them. 1% of over 308,000,000 people is still a lot of people (in the US alone). When I was first diagnosed with celiac disease (9 years ago) , 1 in 250 people had celiac disease where I lived. That is now down to 1 in 130 people and in the specific area I live it's actually 1 in 100 people, and that is because the local teaching Hospital has taken and interest in Celiacs Disease and are carrying out some major and interesting studies (this in a total population of 4,000,000). Both my children have had negative blood studies and although I have told them that there a false negatives because they are now both adults both are refusing to get retested, both have problems when eating certain foods but just chose to ignore the fact that they could have celiac disease. One is overweight and the other skinny deathly pale and has many other allergy related problems, both are short in stature as I am. But what can you do...
  2. that sounds like a good subject for a new thread!
  3. carsondcat


    That might be because Newbys feel overwhelmed by what's going on in their lives.... I wasn't daunted when DX 9 years ago just relieved that i had an answer for 38 years of ill health. i wasn't angry and cry why me, even now people still think I'm missing out but I never have because i would rather not go back to the poor wretched creature I was, and if all it takes is a change in eating habits then so be it.... But people do need to vent their frustrations once in a while and where better to do it than a forum where we've all been there and done that and wear the T-shirt rather proudly (from CafePress)
  4. carsondcat


    I either just eat salad bring a gluten-free plate that everyone including myself can eat, or just bring my own to eat seperately. All i need to know first is wether i can eat somewhere or not. It's not a big deal and the people who usually have problems with it are the people either newly diagnosed where it seems overwhelming, or where it's their nature to be just plain plain pig headed. If I'm somewhere where someone is smoking I move away, but in my home they would be asked to go outside to smoke as i am a non-smoker. Boss in my domain but no-where else! Try not be offended by what others write we're all individuals and as such can have our own opinions. Don't be put off, this is a good site and you will get lots of good information and support here... Unless I'm having a bad day
  5. carsondcat

    White Moons On Nails

    I don't recall anything like that but my nails go from bendy soft, to brittle hard where they split across the nail but never vertically. Do you ever get infections under your nails? I'm curious now, i know we are all individuals and everyone reacts differently but the more i read the more i find out that what I thought was normal, because I've had it all my life, is in fact not how it's supposed to be... I've never tested further for anything else as I always imagined that once i was diagnosed it would all be better. I expect I need to rethink this as i had to have a hysterectomy this year due to constant low iron and haemoglobin levels. I haven't tested my levels since as the Dr reckons 12 months to 2 years to get back to normal levels. Now I'm wondering if that was wrong and that I should in fact not wait and see at all.. oh well just ruminating things over in my mind now...
  6. carsondcat

    White Moons On Nails

    For goodness sake, see, I've been diagnosed with celiac disease for getting on for 9 years now and strictly gluten-free as well I've only ever had 1 moon on my left thumb, just looked and it's still there all on it's own (ata boy) I've always had vertical ridges in my nails also, so yet another thing i thought was normal isn't.... Go figure...
  7. carsondcat

    Left Groin Pain Anyone?

    Groin pain, pulled muscle? where abouts in the groin? do you mean a lump..hernia? or is it a referred pain from somewhere else... could be anything .. can you be more specific? if it worsens or doesn't go away my best advice is go see a Dr...
  8. it could be, but what else are you snacking on? if you're sure it was at the Hotel let them now and they can review what they did and make sure it doesn't happen again, as a matter of course i won't eat anything where anyone is unsure of the ingredients, just to be on the safe side... good luck with tracking things down... alternatively you could have picked up a virus from somewhere thats made you ill.. we musn't get so hung up about the food and ignore all other things that could be making us ill
  9. I haven't but i have a friend who swears by them, she uses them to unblock her ears when they become plugged with wax. you lie down with head to one side popin the candle (it's hollow) light the end furthest away from your head and stay with the candle in you ear until it burns down, it's not fiercely burning quite innocuous to watch, but it's not recommended to do it on your own for safety reasons.
  10. I agree that with stubborn people who don't believe in such things as Celiac Disease and think the gluten-free is just the latest food fad going round, you won't be able to explain what you require. So eat before you go and take snacks with you to be on the safe side. That said i would be pretty peeved with my other half if he ever thought that my celiac disease was causing trouble for someone else after all you're the one that has the trouble not them... You need his support not his criticism.. Even my supportive Hubby got slightly agitated the other day at his friends house because they had prepared me a lovely salad and chicken they had even thought about asking me to dish up first me to so i wouldn't get anything in it, but i couldn't make my self eat the chicken because it had been grilled and i wasn't sure about CC issues and the grill and i ended up eating just the salad which I was happy with and had no issues over. I had to refuse the dessert of baked apple and ice-cream because of the pans i saw the apples baked in and the ice-cream was cc with apple pie crust, so even with the best intentions of others you still have to be vigilant and risk upsetting people to stay healthy, It often can't be helped. Diagnosed with celiac disease for 9 years now and still taking my own food with me.
  11. carsondcat


    And I thought it was related to the beetroot plant shows you that I'm no baker, but I do learn something new every day in this forum.
  12. carsondcat

    2nd Round Of Sorghum Bread

    Sorry but first loaf second attempt can't help with your question, but I thought I'd give you a pat on the back for sticking with it.
  13. After almost 40 years of undiagnosed Celiac Disease and 9 years post diagnosis, i have never wanted to try eating Gluten again... why would I? Can't think of even one good reason, no not at all.
  14. Lols, on the unique scent.. me too smells like something has crawled inside me and died (falls off chair with laughter, my poor husband...) I have lots of different symptoms, including pain in various parts of my stomach and intestines and red welts and blotches on my tongue, brain fog, tingling in the arms and hands, debilitating headaches not to mention feeling as if I'm about to explode.... As always great advice from ravenwoodglass
  15. I now have formed BM's unless i make a mistake then I don't... 4 months is still early days yet it can take a while for things to heal.. i can't eat oats even gluten-free ones, and I'm sure others will come back with what they react to as well... I've had celiac disease since early childhood but only diagnosed for the last almost 9 years now, and I'm still making mistakes usually only when i relax my vigilence.... such as not seeing which free flow agent they use in salt/spice... I use sea salt in a grinder now and the same for pepper (pepper corns in a grinder).. At my age i also have to take a magnifying glass shopping Good Luck and keep going...