Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


JoyMurphy

Advanced Members
  • Content Count

    46
  • Joined

  • Last visited

About JoyMurphy

  • Rank
    Star Contributor
  1. steph, I didn't grind it myself...I stayed away from it completely until the past month. It was bobs red mill. I just remember even on the diet, I was having more severe neuro symptoms...they were bad the past few days, along with the stomach issues...It may be a huge coincidence...but it's very...
  2. colleen, I have been tested for so many AIs. Nothing has come up possitive...I actually had a Rhuemy tell me that my high ANA meant nothing. That it was a phenomenon. I am a 640.....it has dropped to 320 but has gone back up and never goes below. I don't believe that it means nothing. If I was...
  3. kareng I ate the rice cakes almost two years ago when I was severely ill. I haven't touched them since then. On the Fasano I ate only 100% natural foods, fruits and vegtables. Nothing with a wrapper, nothing touched by man. The one thing that increased was rice...it became the main staple...
  4. I have been trying to put all the pieces together since my diagnosis 1.5 yrs ago. I have been having lingering neuro symptoms that no one can figure out. I have been checked for seizures, all other autoimmunes etc...and of course, my file at the hospital needs it's own zip code. I know there is...
  5. I was worried about the coffee too. I know I am supper addicted to it, and I have actually increased the amount of coffee I drink. Good lord, there goes all the fun! TBH I would rather do things I can control rather than trying different types of meds.
  6. steph, I have found this to be true. Since getting so sick, I have been forced to be more creative in my cooking. I have always loved to cook. Always a cook, not really a baker....Now I'm a great baker too? My cooking has definitely evolved. Even with the Fasano, it forced me to be more and...
  7. I just don't quite know what to do with the pcp right now. I feel like she is against me. Right now, I'm putting everything back into the celiac "basket" and looking into the restaurant possibility. The fact is that right now, none of the bloodwork is showing another AI..though I know that it...
  8. You know, it's funny.. That was my second biggest fear next to losing the other grains.. It wasn't as bad as i thought. I will give it a try. Irish, i know what u mean about pursueing the ai.. I know there are dozens of ai's not just the main ones covered by the rheumy...but my pcp just throws...
  9. I dont eat out very much anymore.. The restaurants that I tend to trust are far away. There is a burger place near us that has a dedicated fryer but im Very careful there. I wont even get the gluten-free bread... Its not worth it. The least amount of movement from grill to plate the better....
  10. Yes, i would be interested to hear what you have found with other sensitivities and low level exposures... I think that there is no way there could be contamination in the products that i use daily.. But how do i know that for sure? Because a list or a company said so? A list once said i could...
  11. Irish.. I'm not sure... I feel like most drs try to downplay the seriousness of the infection.. But peoe die from it all the time.. And my friend had two daughters who developed autoimmune diseases after the infection. Maybe they are afraid of law suits maybe they are told to downplay.. Who knows...
  12. He is.. I have a repeat endoscopy scheduled in jan. An yes that was the drug.. I did read that about the antacids so i dont think it would be good. So frustrating.. Of course, i know the mrsa was the infection that threw everything into play.. Dont know why they dont want to discuss that. I...
  13. yes, I don't love the steroids. Dr. Leffler prescribed to help with the severity of my gluten exposures...I saw him friday, and asked him about a lot of this stuff. He did say that he has patients with the brain fluttering sensation. Not a lot, but some. Which thank god...b/c they neuro guy kept...
  14. i have heard of celiacs reacting to buckwheat. I've been fine in the past using it. Someone had mentioned a gluten-free bakery that they can't go to anymore b/c they are so sensitive and the baker started using buckwheat and they were reacting to it.