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KnightRobby

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Everything posted by KnightRobby

  1. KnightRobby

    http://youtu.be/ajjj4pLnjz8

    (y)

  2. KnightRobby
    Anyone have any thoughts on this? Because you would want everyday normal items to be used. The big thing that helped the ALS ice bucket challenge was the fact it started with celebrities for exposure.
  3. KnightRobby
    I am sure by now you have heard of the ALS Ice Bucket Challenge. It was created by a social media mastermind and has raised billions and billions of dollars for the disease. So I would think ALS could see major improvement in diagnoses and treatment in the next decade. So I was nominated by my communities to do the ice bucket challenge and took the time...
  4. KnightRobby
    Okay great. Thank you all for the info. I'll have to look up those GoPicnic lunches. I've never heard of them until now. Too bad options are limited when taking stuff on the plane. That's the real pain in the butt to be honest, but it is what it is. And yeah, I have a friend in Sweden and did some homework on Celiac in that area. I guess they had...
  5. KnightRobby
    Hey everyone. Hope you all are doing well. I run 2 networks that are becoming quite successful and have been doing them from home. I have been told it is highly likely I will be flown out to San Francisco and Sweden in 2015. To be honest, I hardly have traveled, which is something I regret but it has been primarily because of my crappy health. I would...
  6. KnightRobby
    It might actually be the milk that could be making everything worse. I will try without it for a few weeks and see how I do. I am thinking that is just it. But yeah, I also experience problems with Apples and pears as well. I am suddenly unable to eat peanut butter or anything from tree nuts, which is a bummer. I'd like to be able to buy some prepackaged...
  7. KnightRobby
    I have an official Celiac Diagnosis through blood work. The biopsies came out to be negative though. I also have had an endoscopy and I got the hayfever diagnosis from an Allergist. I am also anemic, as diagnosed by my Gastro. I really don't know if the anemia could be causing a lot of these problems or not...? Perhaps I should see a hematologist eventually...
  8. KnightRobby
    I have been Gluten free for about a year and a half now. I went Gluten free, I did not get better, and went down to 108ibs. Then I got a diagnosis of severe hayfever and now every time I eat I end up in major stomach pain. The bloating is out of control. I am also allergic to everything, including nearly all fruits and veggies. It has gotten worse since...
  9. KnightRobby
    Alright, stay at home it is. Thanks.
  10. KnightRobby
    Hey everyone. I was wondering what everyone does for eating out? I have Celiac Disease but I also have hayfever and it is hard to explain. I usually have problems with the simplest of seasonings. I don't even know at this point if it is possible to risk eating out. I am still recovering from weighing 108ibs (now up to 160ibs thank goodness). Any...
  11. KnightRobby
    My endosocopy revealed that I have a case of chronic gastritis. Of course, the doctor that did this test ignored this, and really didn't inform me about it until later and I asked and did more homework about it. I am noticing more stomach pain from this Gastritis and was wondering if anyone has dealt with it, or is dealing with it at this time? I have...
  12. KnightRobby
    I used to live in Indiana. I moved to Arizona to get away from the snow. Now all I have is dust and a severe case of chronic hayfever. So much fun. I wasn't expecting that. Still, I really hated the snow and truly understand what a pain it can be!
  13. KnightRobby
    I'm actually questioning rice at the moment. Chex cereals cause me more stomach pain but I don't know if this is from Celiac or Gastritis. And I have chronic case of Gastritis. It seems to be more about some of the textures of foods as well. Anything rough feels rough as well!
  14. KnightRobby
    I've heard Tylenol is gluten-free but I'm having such problems beyond Celiac that I am a bit worried about taking it. I have severe, chronic head pain from TMJ (dislocated jaw which is very difficult to fix). I'm also having stomach pain from Gastritis as well. I'm honestly thinking about just breaking down and taking it. I am thankfully on no other medications...
  15. KnightRobby
    I'm going to try to reply to everyone, as I really appreciate everyone's replies. Bear with me... Actually, it's not crazy. I really have learned not to give a care about what people think anymore (honestly). I'm so sick that, yeah, I find enjoyment going online, talking to a group of friends, and just distracted myself with a good night of...
  16. KnightRobby
    I have severe TMJ also. My TMJ is 24/7 pain. I'm part of several Facebook groups related to TMJ and really don't hear about the pain being this constant. I have an official diagnoses but treatments are expensive and knowledge about it is limited. I can't even lay on a pillow without being sent in severe pain. It's crazy. Anyone have any luck with...
  17. KnightRobby
    Thank you all for the responses. I've never posted something like my original post. I am surprised that I even wrote it all, it was late, and this anemia on top of everything else truly makes me feel awful. It exaggerates my chronic pain and everything else, plus I am so exhausted that simply doing my own laundry or fixing my own meal is a task. I truly...
  18. KnightRobby
    I was initially diagnosed with Celiac Disease exactly a year ago. My blood work came back a positive but my biopsies did not, but I am told I still have Celiac Disease but they aren't 100% positive. I know I have it. I also have severe, chronic case of TMJ which causes severe pain in my entire left head - including the eye, jaw, and neck. And I can...
  19. KnightRobby

    Anyone ever miss a good show and the next day scrolling down through the Facebook Feed is actually scary due to potential spoilers? So far everyone's been pretty tight lipped about The Walking Dead, which I don't know if that is a good sign or not...

  20. KnightRobby

    Just wow. I've tried watching several movies on TV that have ended up being in Spanish. I live in America, not in Mexico. I am NOT going to invest the time to learn Spanish. Either give me the option to switch to English on my TV or make learning English a requirement for Hispanics. Right now I have no way of understanding an American movie in America...?

  21. KnightRobby

    So...since the 80's are popular now, does that make anyone born and raised in the 80's cool by default? Hmmm...I wonder.

  22. KnightRobby
    I've heard of Histamine Intolerance but am I correct in saying that it is such a new idea that many doctors don't support it? I'd like to really look into Histamine Intolerance because I've read up on it and sounds like I have it. I just don't know if doctors are up to date on the latest research. What tests would I need done to find out about histamine...
  23. KnightRobby
    No, no predniisone. I am seriously wondering about asking about it though. I know there are a ton of side effects. Do you think it would be worth checking into and how long should I be on something like prednisone? It seems like my doctor should've mentioned this before, but right now I am anemic on top of everything and have low WBC's (I'm getting retested...
  24. KnightRobby

    Commencing allergy shots tomorrow ...Yay.

  25. KnightRobby
    Okay, that makes sense. Thanks for the reply. Yeah, I'm honestly confused when I get so many different answers from doctors. Even my GI doctor doesn't know what to think, but he is certain I have severe hayfever and allergies. He also said that he has seen absolutely no changes in my villi. Everything he has seen, from both times he's went in, all...
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