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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by livinthelife
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ARCHIVED I'm Hungry!
livinthelife replied to cindyb1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Last time we went to grill with friends, I took my own chicken and a piece of foil to grill my chicken on so that it didn't touch the grill surface. Also took my own dip and my own chips and told them how sensitive I was. She got out new butter for the potatoes and it was a great evening! Your CC could've come from anywhere - the eggs, the BBQ sauce... -
So glad you're going to see someone. It always help to work through the anger. I talk to someone too. I realized how much I resent everyone who can eat whatever/whenever. In short, I was being a real witch. I hope your visit went well and that you liked the person!
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ARCHIVED Synthroid Revisited...other Brands Better?
livinthelife posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I take 100 mcg of Synthroid and have for years. Since my celiac diagnosis last fall, it's the only medicine that the manufacturer won't guarantee as gluten-free. I spoke with the company today, and the rep confirmed that they do not test and would not guarantee the medicine to be gluten free. She told me to speak to my physician about it. DUH. Yes, I... -
ARCHIVED Ravenously Hungry, Bloated, And Gassy From gluten-free-Diet
livinthelife replied to ladolcevita's topic in Related Issues & Disorders
Agree with everybody about eating non processed foods. I use quinoa as "pasta" when I need a fix. It's very yummy and a whole lot healthier. I use quinoa for almost everything! Just an idea for you. Knowing how much better you feel when eating whole foods that you cook yourself will be all the encouragement you need! -
ARCHIVED Dedicated Facilities Or Not
livinthelife replied to BlessedMommy's topic in Gluten-Free Foods, Products, Shopping & Medications
As a rule, I try not to, but, as others have said, it's not required to be labeled so I probably eat a lot more of these "shared facilities" foods than I think when I opt for a package of something. I know Lay's jalapeño kettle chips (total cheat guilty pleasure!!) bother me since I keep a food journal and they seem to be a common "trigger" food, so ... -
Safe Wines For Super- Sensitive People?
livinthelife replied to Shell156's topic in Super Sensitive People
I haven't had any bad reactions to wine. Unless of course I forget when to quit! -
ARCHIVED It Hit Me Last Night
livinthelife replied to veryami1's topic in Coping with Celiac Disease
HUGE GREAT BIG HUGS!!! I completely understand too. Just when I think I know all the stuff I can't have, I find something else. Last week it was those robin eggs for Easter. Technically, I think I *knew* I couldn't have them but it wasn't until my hand was going to them for my yearly gorge that I truly KNEW I couldn't have them. I'll neither confirm nor deny... -
ARCHIVED Awesome Service Experience
livinthelife replied to Adalaide's topic in Coping with Celiac Disease
It's wonderful when people "get it." What an awesome call - and a welcome change! -
ARCHIVED Dealing With People Who Don't Understand
livinthelife replied to veryami1's topic in Coping with Celiac Disease
Yeah, I also find that if I point to my abdominal area and make a very concerned yet quizzical face that most people don't want to talk about gastro stuff and the subject is dropped. The poop factor makes it real! Don't you wish these people could live in our bathroom world for, oh, say, just one long night and then have to force themselves to function... -
ARCHIVED Dealing With People Who Don't Understand
livinthelife replied to veryami1's topic in Coping with Celiac Disease
Just tell her you've recently had a bad reaction to something and don't want to "upset the balance" and then rave rave rave about how great everything looks but that you just can't upset the balance." That's what I do. Then quietly slip out your own piece of chicken and whatever veggies you have. I think the first time is the hardest time. I take my... -
ARCHIVED Temporarily Bringing Gluten Into A Gluten Free Kitchen--Help Me Think This Through
livinthelife replied to BlessedMommy's topic in Coping with Celiac Disease
I'm glad we could help!! LOLOLOL!!! I came home today from out of town to a Domino's box on the counter. He says he cleaned up then he said he'd put his poison pizza away! -
I agree! Feel blessed and loved! It's wonderful to feel so supported! My coworkers bring things like pizza and sandwiches and say "OOPS! Should've gotten you something." I just smile. I agree too that if you're worried about cross contamination that you could just bring some of your own goodies to share and show them how good gluten free can be!
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ARCHIVED Glutening Myself And So Upset
livinthelife replied to livinthelife's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am so glad I posted this here! I wonder if I misheard him about the zinc and he said 25 and not 125? Gotta be? I'm already taking 800 of D so he's adding 600-800 more. That sounds more workable. THANK YOU! -
ARCHIVED Glutening Myself And So Upset
livinthelife replied to livinthelife's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
He said supplement with 600-800 of D and 125 of zinc sulfate. I've been taking a multi vitamin with 100% of both for years and also I take calcium which has magnesium and and D3 (100%). D and zinc were the only two "officially" under levels and a couple of others were low normal but he didn't say anything about them (A and ferritin). I think I need a... -
ARCHIVED Glutening Myself And So Upset
livinthelife replied to livinthelife's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Now the doctor plans to retest in three more months and I'm supposed to take more zinc and D since those are below normal. A and ferritin also low but he didn't say to supplement those any more than I already am with my multi-vitamin. I also take sublingual B12 and also calcium (that has magnesium and zinc), so I have no idea what all is going on except that... -
ARCHIVED Shocking Places You've Found Gluten!
livinthelife replied to GFLindsey's topic in Coping with Celiac Disease
My probiotic had wheat in it! -
ARCHIVED Glutening Myself And So Upset
livinthelife posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm so mad at myself. Furious. I could kick myself. My followup bloodwork came back today and my ttg igg was almost as bad as it was the first time. First time it was 9.5 and now it's only 9.2. This is in addition to vitamin/mineral deficiencies. It's been four months since diagnosis. I cried because I've been so crazy careful. New cookware, new everything... -
ARCHIVED Does The Aga Igg/iga Blood Test Tell You Anything?
livinthelife replied to SiandAshs Mom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe he could at least peek at your terminal ileum during your colonoscopy? Worth an ask? I hope you find an answer. -
ARCHIVED Does The Aga Igg/iga Blood Test Tell You Anything?
livinthelife replied to SiandAshs Mom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I love that you put it this way. It's just so true. I'd been having problems for years. New doctor said I presented celiac, but he opted to do a colonoscopy first because I'd had polyps before. He went into the ileum and found completely flattened villi. That's when he ordered an endoscopy for the next time and did blood work. Endoscopy also showed inflamed... -
ARCHIVED Cracker Question
livinthelife replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
I like the Breton gluten free. YUMMY!!! -
ARCHIVED New Member. Had To Go To Medical School To Figure This Out!
livinthelife replied to Deekle's topic in Introduce Yourself / Share Stuff
I was reading your gluten challenge and then, when you stopped, I knew. Glad you have a diagnosis. It's a new life for sure. Just think of all the energy you'll have to study, study, study!! -
ARCHIVED Fragrance-Less
livinthelife replied to FruitEnthusiast's topic in Introduce Yourself / Share Stuff
I buy plain jojoba oil and add an essential oil. This time I added peppermint to the oil and slather it on after I'm almost dry after a shower. Maybe something like that could work for you? I thought the peppermint would give my tired butt some energy. Yeah, yeah, yeah... There are so many yummy scents! -
ARCHIVED New To Everything, Need Insight
livinthelife replied to missmatalini's topic in Coping with Celiac Disease
My own father says it's not a real disease and that I need to get tested. I keep reminding him I'm positive for two different biopsy procedures and all the blood work. He STILL doesn't believe me. He asks all the time. I keep saying I'm eating whole foods that I prepare myself. He can't get over it. Oh well. I do what's healthy and it sounds like you do too... -
ARCHIVED Tired Of Having No Life
livinthelife replied to FruitEnthusiast's topic in Coping with Celiac Disease
Oh man oh man do I relate to what you're going through. I'm just glad now when gluten doesn't make throw up and I *only* have explosive D. And I also wonder when *only* D for a few days became a GOOD thing? And the exhaustion. And the utter inability to complete my own sentences/thoughts much less listen to and process someone else's. I've been anti... -
ARCHIVED Vodka
livinthelife replied to Patt's topic in Gluten-Free Foods, Products, Shopping & Medications
I second Tito's! Great vodka! Unless of course I have, well, ummmmm, too much.