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Sarah8793

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Everything posted by Sarah8793

  1. Sarah8793
    Hi, Yes, your experience sounds like mine. I do get bloating very often. I would say I get bloated, stomach distended at the minimum twice a week. I often look like I am pregnant! If I eat anything with milk in it, I get stomach pain. So I don't eat anything with gluten, or milk in it. And lately, it seems if I have a glass of wine (especially on an...
  2. Sarah8793
    So maybe it is related to being glutened then. Hmmmm. Thanks!
  3. Sarah8793
    Today I had something happen that has happened atleast 2 other times to me within the last year or so. I will start feeling down emotionally, then after that I will become very fatigued (comes on quickly) and feel cold/chills. It is like I am coming down with a virus. I usually have to take a nap and pile tons of blankets on me to stay warm. About an...
  4. Sarah8793
    We will be moving to Central New Jersey this summer. A little south of Trenton. Can anyone tell me what is available in the way of shopping for groceries, and eating out? Thanks!
  5. Sarah8793
    General Mills is reformulating their rice chex cereal. They are taking out the barley malt syrup and replacing it with molasses. They are also going to be producing the rice chex cereal in a dedicated facility! The new boxes say "gluten free" on them. Be careful when you shop because some of the old non gluten free formula boxes are still on shelves in...
  6. Sarah8793
    Hi, One thing you might watch is if there is a connection to his hyper behavior with food coloring-especialy red food coloring. I have noticed that while gluten and dairy affect my children in other ways, red food coloring makes them start bopping off the walls. Just a thought. Sounds like you are a very caring and concientous mom!
  7. Sarah8793
    My 9 year old's behavior changes dramatically after getting gluten or milk. After gluten, he becomes paranoid, anxious, cries at the drop of a hat, picks on his sister more, has angry outbursts and sometimes wets the bed. It is all irrational behavior for a nine year old. He doesn't have digestive symptoms. We are going through it right now and I have...
  8. Sarah8793
    Thanks for the supplement suggestion. I am not currently taking any because I have had trouble in the past (which I now think was soy related). So I do need to find good, dairy, gluten and soy free supplements. I guess my real question now is, if I get an official diagnosis, what are the chances of being denied health insurance in the future?
  9. Sarah8793
    Yes, unfortunately I have been dairy free for 2 years and soy free for 1 year now. I think the weakness is from my hypoglycemia which is related to gluten ingestion.
  10. Sarah8793
    This is a good question. I have no idea. I guess I will need to find this out first.
  11. Sarah8793
    After reading Momma Goose's post about the pill cam I got really excited about the idea of having this procedure done. History: Had 2 negative biopsies, but a positive through enterolab and I have the 2 main celiac genes. I am 95% sure that I have celiac disease. Right before taking gluten out of my diet I was really sick. I became hypoglycemic and this...
  12. Sarah8793
    This is absolutely fascinating! I really wish I could have done this a few years ago when I was still eating gluten. I had two endoscopy/small bowel biopsies done and they were negative. I'm 95% sure I have celiac diesease though from my genetic testing and enterolab results. I'm wondering if I could/should go get it done now to see if there is still...
  13. Sarah8793
    Thanks Gemini for this information. My ENT is reccomending a CAT scan with and without contrast dye for this Monday. I'm wondering if I should still do that or if having the blood work done first would be less invasive? He did mention doing bloodwork after the CAT scan. Is there a cure for Sjogren's disease? Is it dangerous our just annoying? Thanks...
  14. Sarah8793
    For about 3 months now I have noticed that I have this swollen gland in my neck. Saw the ENT today and he thinks it is a swollen salivary gland. He mentioned Sjogren's disease as a possibility but I don't have ANY of the other symptoms. Interestingly I have been getting gluten accidentally for several months and have now discovered the source and eliminated...
  15. Sarah8793
    Thanks Beagle for the info. on Melatonin. I will also check out the book you mention. I am glad to have these ideas because I have never gone this long with poor sleep. AliB, This may be something. Because I was getting glutened over the last few months, my hypoglycemia symptoms started returning at night. I was having to eat a snack...
  16. Sarah8793
    Thanks Nancy! I have a calcium supplement with D3 sitting in my cupboard that I never take. Maybe I will start with that and if things don't improve, I'll go higher. The amount of D3 in my calcium supplement is 400 iu. So this might no be enough. Also it isn't the oily kind. I'm willing to try anything at this point.
  17. Sarah8793
    For about a month now, I am waking up like clockwork every night at 2:30 a.m and then again at 5:00 a.m. I have never has this problem before and it is awful. Often when I wake up at 2:30, I don't completely fall back asleep, I just drift in and out of a light sleep until morning. When I wake up I am not in pain, too hot or cold, hungry, thirsty or needing...
  18. Sarah8793
    Thank you to all of you for your ideas. Multiple food intolerances was the vocabulary I needed. I think I will try saying "no thank you," or I just ate, as takala mentions and then if pushed I will use the pharse about multiple food intolerances. Thanks takala also for reminding me that I'm not alone with this. I just never meet anyone (besides...
  19. Sarah8793
    When I was just gluten and dairy free, it seemed easier to pass with a polite, no thank you I can't have it because of gluten etc. But now, I can't eat ANYTHING other people offer (except maybe fruits and vegetables). The thought of saying no I can't have it because I can't have anything with gluten, dairy, or soy in it, makes me feel weird. It is like...
  20. Sarah8793
    As far as I know I am not living in an altitude that would cause problems with baking. I have never had any problems in the past. Mom23boys, Thanks for your idea. Maybe I will try adjusting the temperature like you do.
  21. Sarah8793
    I have been buying Bob's Red Mill Homemade Wonderful gluten-free Bread Mix and making it at home. I love the taste and texture, BUT my loaf is not coming out right. I follow the directions exactly and while baking it doubles in height. It is like there is actually another whole loaf of bread sitting on top of the one in the pan! One time I had to adjust...
  22. Sarah8793
    Thank you everyone for your ideas. Some of you mentioned utilizing the school nurse. I'm not sure that my son would like to leave because then it would be one more thing to explain and, they usually eat their snack in the middle of math time. Also I can't give paperwork stating he needs to be on this diet, because as I said earlier he wasn't diagnoseed...
  23. Sarah8793
    We did a tea party for our 5 year old. I made cupcakes (gluten free) in the shape of flowers (wilton flower cupcake mold), frosted them and added pretty sprinkles. I served choc. dipped strawberries, potato chips, pretzels (gluten free), and carrot sticks. I made real tea (candy apple) and added sugar, but noone wanted it, so I served sprite instead.
  24. Sarah8793
    Forgot to add: Sometimes he has some gas and burping during these times.
  25. Sarah8793
    Three times now my son has woke up around 3:30 a.m. saying that his tummy really hurts (he is nine years old). If he takes a bath he feels a lot better. Two of the times he has had diarrhea starting at 5:00 a.m and lasting until about 7:00 a.m. The three times have all been on weekends, so this has happened over the last three weeks. I can't think of...
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