Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

cherie012

More Questions On Celiac

Rate this topic

Recommended Posts

Hi All~ Last week my 2 year old tested + for 2 of the celiac genes. Coupled with his symptoms, I am nearly 100% sure this is his problem, his scope results and blood work will be in this weekend..

Now. Turning the tables to me. I have read there is a genetic factor to celiac. I am wondering if this is my issue as well? I have graves. As does my brother. My dad has lupus. My understanding is both of these conditions are linked to celiac, in particular the genes that my son has tested + for.

I question celiac now for me because I have always had bouts of GI issues, labeled irritable bowel. From very young. And, for the past 8-9 months now I've had hives. No known origin, it seems, at least not environmental or seasonal. I have noticed they get WAY worse after eating..... sandwiches.15 grain whole wheat no less. :unsure: if I consume a large quantity of these items, the following day my lips, eyes, and face swell horribly. I have hives from head to toe. Antihistamines won't work on them. On days I consume lesser of the wheat family, the lesser the hives are..

Now, I know there are atypical presentations, but could this be it? Am I barking up the wrong tree? I mean, my peanut got this from somewhere, and seeing that my DH is japanese ( very low incidence I have heard) and has no issues whatsoever resembling all of this stuff, then I am assuming he has got it from me.

Any insight is greatly appreciated. I have spent the past week researching ALOT. and lightbulbs are finally coming on. Thanks!

Share this post


Link to post
Share on other sites

I think you are probably right. He did get those genes from someone. I have Graves too....at first I assumed it was the Graves causing my symptoms but my PTU wasnt eliminating the symptoms and it always had worked very quickly in the past. I got talked into radioactive iodine and even after going hypo and then stabalizing my levels...my symptoms just got worse and worse. Nearly 3 years later I went on a gluten-free diet and most of my symptoms disappeared. I tested positive for gluten intolerance but dont carry either of the main Celiac genes. My face and hands also get very puffy and swollen from gluten. I also have had to eliminate dairy and I'm still figuring out other sensitivities. There is a big link between celiac and thyroid disease so I think you're on the right track. Why not get tested? I'm doing much better now...I was on disability for 2 years after my radioactive iodine and doctors couldnt figure anything out. 1 month after the diet and I was back at work and havent missed a day yet. :D

Share this post


Link to post
Share on other sites
I think you are probably right. He did get those genes from someone. I have Graves too....at first I assumed it was the Graves causing my symptoms but my PTU wasnt eliminating the symptoms and it always had worked very quickly in the past. I got talked into radioactive iodine and even after going hypo and then stabalizing my levels...my symptoms just got worse and worse. Nearly 3 years later I went on a gluten-free diet and most of my symptoms disappeared. I tested positive for gluten intolerance but dont carry either of the main Celiac genes. My face and hands also get very puffy and swollen from gluten. I also have had to eliminate dairy and I'm still figuring out other sensitivities. There is a big link between celiac and thyroid disease so I think you're on the right track. Why not get tested? I'm doing much better now...I was on disability for 2 years after my radioactive iodine and doctors couldnt figure anything out. 1 month after the diet and I was back at work and havent missed a day yet. :D

I took PTU forever. somewhere along the line, after many, many years of my thyroid being high and 4 pregnancies, it finally gave out. Now, it is low ( easier to deal with than high, though!) my baby brother just underwent the radioactive iodine 6 months ago, they gave him double the normal dosage, and lo and behold, his thyroid is high again... So... I have fowarded all info on this stuff I have found over the past week or so.

I will get checked. But, I am also going to start the gluten-free diet tomorrow with my baby. If my symptoms subside, then I'll just take that as my cue~ I am tired of feeling miserable <_<

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • April 17, 2019 Until April 27, 2019
      0  
      April 17-27, 2020   For the past few years many of you have asked us to arrange a River Boat Cruise that will allow us to visit Amsterdam's famous Keukenhof Gardens at its prime time of the blossoming of the millions of Tulips and Hyacinths - alongside the windmills of the Netherlands.  With the participation of a minimum of 20 persons we have arranged an All-Inclusive Cruise from Antwerp to Amsterdam.  This cruise will not be offered to the public until January, 2019 and always sells out quickly.   THERE WILL BE NO MONEY REQUIRED NOR COMMITMENT FROM YOU until we have all the final costs and details.  If you are at all interested check out our website for as many of the details that we have as of this time.   We need your request to be placed on a list of interested participants so we can present that number to Uniworld to show we have the sincere interest in this All-Inclusive Bob & Ruth's Gluten-free Cruise.   PLEASE CHECK OUT OUR WEBSITE FOR THE DETAILED INFORMATION THAT WE HAVE AS OF THIS TIME.   http://bobandruths.com
    • April 24, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • May 04, 2019 Until May 05, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
×
×
  • Create New...