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Chantalle

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Chantalle Rookie

I'm very new here (2nd post). I'm not too sure about everything yet. But I have noticed "reflux" coming up often enough. My son has acid reflux disease and takes pretty high doses of meds normally for adults. He's almost 13 but was diagnosed at 10. He's been through a lot of tests and is back at Children's GI clinic again to see doc and doc wants him to see the psychologist on staff (she knows he has bad reflux but says she feels it's exacerbated by stress). I could go on and on here - but I won't! I guess what I'm getting at is: if I do end up having celiac (I'm going to doc this Friday) is reflux as bad as he has a symptom of him having possible celiac? I wonder....I know you may not know, but the fact your son has reflux - well, I though you might know the connection there.

I've been frustrated all my life over this. I believe that I have lived this way for so many years (since 3) that I just don't know what it feels like to be "normal". I suppose feeling ill so often is normal for me. Then again, it could still just be IBS and I'd be back at square one again. But I know how to live that way anyhow so not so scary for me! Biggest problem for me is that I never have complained to my doctor's about the IBS because I've had it so long it's just a way of life for me. This will pretty much come out of the blue for this doctor (been seeing her for 8 yrs.). I've had the depression too - not severe, but general depression - and hated taking the drugs so now take a low dose one for severe PMS (I'll never go off that - saved my life!! and my husband's!! lol).

At least if I do have celiac in the end I'll have a place to come to for some great help!

Chantalle


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plantime Contributor

Your son very well could be celiac, especially if you are. Acid reflux like his could be his body trying to digest the gluten. I never complained about only doing a #2 once every 10 days because I thought it was normal for me. Every body is different, after all! I did complain about the pms and cramps, the mood swings were destroying my marriage and the cramps were debilitating! All I got for it was Midol and Pamprin, neither of which really helped. Now that I am glutenfree, I potty almost every day, My midsection does not hurt, and I do not have such severe mood swings. I never had diarrhea or wasting away, but I do still have some joint pain (doc says I have arthritis now). Talk to your sons GI doc about testing him for celiac and gluten intolerance. If you can't get testing, try the gluten-free diet. It is better than the bland diets my husband had to be on!

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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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