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  • Recent Activity

    1. - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
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      The Struggle Has Overtaken Me

    2. - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Gluten challenge - Need some guidance

    3. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Gluten challenge - Need some guidance

    4. - cristiana replied to cristiana's topic in Related Issues & Disorders
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      Low iron/high normal haemoglobin

    5. - RMJ replied to cristiana's topic in Related Issues & Disorders
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      Low iron/high normal haemoglobin

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    • Aretaeus Cappadocia
      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
    • cristiana
      V. interesting. It might well explain the tiredness, and the increased headaches, then.   I'm trying to get my TTG numbers down a bit by avoiding eating out.  Hopefully then if I've healed more I guess I will be able to absorb more iron.  Will find out at the next blood test in the autumn. Thanks so much for your help.  
    • RMJ
      Yes it matters.  Hemoglobin isn’t the only molecule in your body that needs iron.  Here are several articles on non-anemic iron deficiency: Non-anaemic iron deficiency https://www.thebloodproject.com/non-anemic-iron-deficiency-naid/ Can you be iron deficient without anemia
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