Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Mwmber,new Diagnosis


caandahl

Recommended Posts

caandahl Newbie

I have a 13 yr old that has had type 1 diabetes for 5 yrs,and was just dx'd w/celiac,last month.

I also have a 4 yr old w/severe autism and other things,and a mostly typical 5 yr old.

I would aprriciate any suggestions,on making the family gluten-free,and any info.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

welcome to the board. The easiest way to take your family gluten-free, is to stick with foods that are naturally gluten-free. Plain meats and proteins (seeds and nuts), Simple dairy products, fresh fruits and vegetables, starches like potatos, rice and corn... there are so many healthy foods that are naturally gluten-free... and with a few gluten-free staples like a good gluten-free pasta (like Tinkyada rice pasta) you can make just about any family fave dish.

Feel free to ask any questions. There are a lot of mainstream products that are also naturally gluten-free, so you can still have some junk foods and things like salad dressings, sauces and even candy...

I can e-mail you a newbie survival kit that I have put together, it's a collection of files I wish I had when I was first dx'ed. Just e-mail me at nisla@comcast.net and put "request newbie survival kit" in the subject line. I will send the files on to you as soon as I can.

Canadian Karen Community Regular

Hi! Welcome to the board!

Once you get the hang of it, the gluten free diet really becomes second nature - in fact, I can hardly remember what it was like eating gluten-filled stuff! LOL!

Is your whole house going gluten free? If that is the case, you don't have to worry about any cross-contamination issues. It makes life alot easier, especially with children. In my family, I am the only one with celiac, and I have four children and a husband who all eat a regular diet. When I am making food for the kids, sandwiches, etc. or giving out cookies, I am forever wiping gluten-filled crumbs off of the counter!

I would suggest first and foremost getting yourself a copy of the delphi gluten free list. It is invaluable - a must have!

Firstly, go here: Open Original Shared Link

Then on the left hand side, click on Health & Wellness. The first (sometimes second) forum that comes up is the Celiac Disease On-Line Support Group, click on that. (You will need to register, but it is free..)

Once you are in there, you scroll down until you see "Gluten Free Products List". Click on that. You will be absolutely amazed what mainstream items we can have. And it's listed in convenient categories, making it so much easier when we are out shopping. There is a section you can go into to download it and print it off.

Also, there are companies that are very celiac friendly. Kraft is one of them. Kraft will always list if there is a gluten ingredient in it. We are very loyal to Kraft!

You have probably read up and discovered that there is documented proof that there is a link between gluten and autism. There have been many documented instances where there was a vast improvement once the gluten free diet was started......

I am sure others will pipe in, just wanted to welcome you and say "Glad you found us!"

Hugs.

Karen

Guest nini

you don't have to go through all of that to get the Delphi list, it is part of the Newbie kit I put together, so I can e-mail it to you if you want...

Canadian Karen Community Regular
you don't have to go through all of that to get the Delphi list, it is part of the Newbie kit I put together, so I can e-mail it to you if you want...

You are so good, nini!!! You rock!

Guest nini
You are so good, nini!!! You rock!

lol Karen, I just try to make it as easy as possible for the newbies!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      9

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    3. - Tobo replied to HectorConvector's topic in Related Issues & Disorders
      333

      Terrible Neurological Symptoms

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,728
    • Most Online (within 30 mins)
      7,748

    Denver Peg
    Newest Member
    Denver Peg
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
    • jenniber
      yes, i told my brother that, but he’s fine with never getting an official diagnosis he says! he doesn’t often take my advice LOL
    • Tobo
      I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that was also diagnosed for nerve pain. I said no as I didn't want the stigma of being on antidepressants. Seven years later I begged my GP to prescribe them and my life was changed almost immediately. If I'm glutened accidentally whilst eating out then my nerves pain/symptoms get worse but it's nothing compared to taking the medication and feeling a little drowsy every now and then.  The best of luck for the future.
    • trents
      @jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread) for several weeks leading up to the day of the blood draw.
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.