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tailz

Anyone Ever Get Glutened From Perfume? Smell Of Wheat?

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The effects might not be directly gluten related but I wonder if they are celaic related.

Considering most people don't have strong reactions to most perfumes (or people wouldn't wear them) I find it more than coincidence so many of us suffer from perfumes and so many suffer more when glutened or before gluten-free Diet

That makes sense, what with a hyperactive immune system. When a system is always on high-alert, there is always a threat. I think it can be celiac related, but I highly doubt the culprit for perfume reaction is gluten.

I get nauseated going through the bread aisle of the supermarket or a bakery (the storefront, not the kitchen), but I know that's psychsomatic.

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After being gluten free I was still sometimes having symptoms mostly in the mornings; a nurse was telling me thatyou have to check your cosmetics such as perfumes.. she mentioned Clinique products. I have used clinique for years as well as biolage. When I went home that afternoon I proceeded to have given away all 5 bottles of Clinique perfume( yes I miss my Happy). I also checked my biolage guess what wheat germ oil. My symptoms needless to say went away. The whole shampoo thing seems a little controversal, I dont use anything with wheat or gluten.

I get symptoms of being glutened when I go in a health food store...from the whey protein? I swear there is gluten in perfume, too, that gives me a reaction. I know my father-in-law knew someone who was so allergic to poison ivy that he'd swell up if he smelled it burning even. Do any of you react to the smell of wheat, too? Let me know:-)

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Guest nini

why is it that when I was younger (even though I've always had Celiac symptoms) I wasn't affected by fragrances... now if I TOUCHED something with an artificial fragrance in it sometimes I would break out in hives but it used to not bother me at all to smell perfumes, powders, incense, candles, air fresheners, household cleaners etc... but as I've gotten older and more so within the last 5 years, my sensitivities to chemicals and fragrances has increased dramatically. I've even had anaphylactic reactions to certain fragrances and have to carry an epi pen and benedryl all the time now??????????????

I used to love incense and candles and perfumes, my favorite was Giorgio Red, but now I have to stick with essential oils if I want anything with a fragrance. Febreeze about gags me and that Tag body spray OMG I just about throw up when I smell it and my glands in my throat swell from certain ladies and men's fragrances and I get burning in my eyes and an instant headache... I have to use fragrance free laundry soap now and all natural household cleaners... It's especially rough on me if I go over to someone's house or in a business where they have those Glade plug ins... oh, yesterday I ordered a slushy from dairy queen and the girl who handed me my drink REEKED of some powdery fragrance, the fragrance clung to my cup and and thought I was going to have to throw it out. I ended up wiping it down with an alcohol prep pad from my first aid kit and drying it with a napkin... but until then it was almost dizzying what it did to me.

I wish someone could explain it to me because it's almost debilitating sometimes and I dont' want to be confined to my house or be one of those people who wears a filter mask in public all the time.

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"I just threw out some gels that were sitting on my counter that were causing me to react every time I sat at the computer outside my bathroom door. There are glutens and wheat in everything. I'm so sensitive to even soy and chemicals that I am now using Cetaphil Gentle Hand Cleaner as shampoo...best I can find so far for being so sensitive. Even baby bath (Johnson's) gave me a reaction. I wondered why my eyes would swell when I wore makeup. I even just stopped wearing eye makeup and used tinted chapstick. Nope! I still got stuffy!"

This sounds like allergies or sensitivities, though, not celiac.

richard

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I get symptoms of being glutened when I go in a health food store...from the whey protein? I swear there is gluten in perfume, too, that gives me a reaction. I know my father-in-law knew someone who was so allergic to poison ivy that he'd swell up if he smelled it burning even. Do any of you react to the smell of wheat, too? Let me know:-)

I have been diagnosed with celiac since 8/08 been trying to stay gluten free, but I can`t breath it, wear it ,touch it, smell it.

Lost my job because of that. Can`t go into the deli/bakery area of any store, can`t go down the bread isle or the baking isle.

Most colognes, perfumes, cosmetics, shampoos and conditioners have gluten in them either as fillers or binders. Can`t be around

people with a lot of perfume or cologne on. My husband can`t wear afthershave lotion or cologne. If I use shampoos with gluten in it by mistake then I pay for it for three or four days afterwards. My Gastroenterologist reconizes this fact, but my family Dr doesn`t have

an understanding of me not being able to breath it. I found out the hard way , I can`t eat, breath, wear, or touch any thing with gluten.

Guess I`m really super sensitive to gluten. Hope this helped.

Marshella Byrd

jbyrd@cswnet.com

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I have been diagnosed with celiac since 8/08 been trying to stay gluten free, but I can`t breath it, wear it ,touch it, smell it.

Lost my job because of that. Can`t go into the deli/bakery area of any store, can`t go down the bread isle or the baking isle.

Most colognes, perfumes, cosmetics, shampoos and conditioners have gluten in them either as fillers or binders. Can`t be around

people with a lot of perfume or cologne on. My husband can`t wear afthershave lotion or cologne. If I use shampoos with gluten in it by mistake then I pay for it for three or four days afterwards. My Gastroenterologist reconizes this fact, but my family Dr doesn`t have

an understanding of me not being able to breath it. I found out the hard way , I can`t eat, breath, wear, or touch any thing with gluten.

Guess I`m really super sensitive to gluten. Hope this helped.

Marshella Byrd

jbyrd@cswnet.com

There are many cosmetics and perfumes that do not contain any gluten products or by-products. They tend to be the expensive ones, though, the ones the majority of people do not buy. You also cannot be glutened by being in the same vicinity as gluten. You sound like you have extreme allergies, along with Celiac, and that is entirely possible. Touching and breathing of gluten products will not cause a true Celiac reaction unless you inhale a pile of flour and some of it makes it's way into your stomach. I do not check any topical products for gluten, except what goes on my lips, as I have no wheat allergy. I do not understand why so many people have a problem understanding the difference between an allergy and an intolerance. Why make this lifestyle any harder than you have to?

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There are many cosmetics and perfumes that do not contain any gluten products or by-products. They tend to be the expensive ones, though, the ones the majority of people do not buy. You also cannot be glutened by being in the same vicinity as gluten. You sound like you have extreme allergies, along with Celiac, and that is entirely possible. Touching and breathing of gluten products will not cause a true Celiac reaction unless you inhale a pile of flour and some of it makes it's way into your stomach. I do not check any topical products for gluten, except what goes on my lips, as I have no wheat allergy. I do not understand why so many people have a problem understanding the difference between an allergy and an intolerance. Why make this lifestyle any harder than you have to?

Yep, I agree. Life as a Celiac is enough of a PITA as it is. No need to check ingredients of shampoo, body lotion or any topical product (with exception of lip balm/lipstick), unless you are finding an allergic reaction to it.

Personally, I don't how the people who say they react to the gluten in a topical product, know for certain it's the gluten they're reacting to and not another of the ingredients.

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Yep, I agree. Life as a Celiac is enough of a PITA as it is. No need to check ingredients of shampoo, body lotion or any topical product (with exception of lip balm/lipstick), unless you are finding an allergic reaction to it.

Personally, I don't how the people who say they react to the gluten in a topical product, know for certain it's the gluten they're reacting to and not another of the ingredients.

I get reactions from topical gluten all the time. I used to have a nasty, oily, flaky scalp and nothing I did helped it. I also would get dry patches on my skin that looked like eczema. Finally, after going to a gluten free lifestyle, my hair is beautiful and shiny, my scalp is healthy, and my skin is starting to heal. We figure it out by a painful process of trial and error. I still get reactions when I come in contact with gluten. My lips will burn when my husband kisses me after eating something with gluten in it.

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