Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Beri Beri


Guest Eagle

Recommended Posts

Guest Eagle

I was wondering if anyone else had gotten Beriberi and how they treated it. By the time I had gotten to the doctor my thiamine was barely within the normal range but it had already caused inflammation in my gastro tract and nerves in my back. I was wondering how much thiamine was added to the daily diet and for how long to get things working again. Unfortunately my doctor didn't even believe that I could have it because it just doesn't happen in the Western world except to malnourished people. Of course they don't believe I have Celiac either.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nama shivaya Explorer

Hey Eagle:

Beriberi, huh? Wow. Well, celiac can certainly cause malnutrition. I am in the process of a dx for neuro problems that include back spasms, weak legs and arms. My PCP only tested me for B12, which was in the 600's. I guess she feels that if my B12 is w/i normal ranges, the rest of my ranges should be OK. Hmmm. How were your other nutrient levels besides the thiamin deficiency?

Anyway, sorry I don't have any info for ya, but I thought it was interesting that you had gotten Beriberi. I wish you much success with your recovery!!!!!

Nama :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      357

      Terrible Neurological Symptoms

    2. - trents replied to Richard Rusnak's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      I was diagnosed with celiac 15 years ago. in,

    3. - Richard Rusnak posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      I was diagnosed with celiac 15 years ago. in,

    4. - Russ H replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      8

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,063
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      This may not be the cause, it's pure speculation on my part, but for 10-15 years I had a tingling/burning/electric-like shock sensation that emanated from my right-neck upward across the right-side of my head. I was worried about having a stroke or something so got all sorts of tests done, including an MRI, which found not much--only a minor degenerative disk in my neck--which I just accepted as the cause. Fast forward to when I was ~45 and I was hit with shingles in the EXACT place that this sensation would travel--I ended up with a very painful case of shingles that felt like the right-side of my head had been set on fire, and had the blistering and pain that ran along the exact path of nerves that I had felt this sensation travel along for the prior 10-15 years. For me, this was a shingles warning, and all those feelings were likely inflammation in my nerves. Needless to say I've not had this since getting my shingles vaccines at 50.  Your situation could very well be something else, but I just wanted to mention this possibility because your symptoms sound similar to what I experienced. I'm not sure if you're in the age range to get a shingles vaccine, but it may be something to consider.
    • trents
      Welcome to the celiac.com community, @Richard Rusnak! The short answer is "No". Barley is a gluten-containing grain. The three gluten-containing grains are wheat, barley and rye.  Barley and rye contain less gluten than wheat but still should be avoided. Understand that smaller amounts of gluten may not produce a noticeable reaction in so far as symptoms go, but they still may be causing some inflammation in the gut. Products derived from gluten-containing grains should also be avoided, for instance malt and malt flavoring. 
    • Richard Rusnak
      My question is it possible that Barley is OK > I know wheat gives me stomach pain, rash, and severe diarrhea.
    • Russ H
      Bread has about 8 g of protein per 100 g, so a piece of bread weighing 125 mg contains 10 mg of gluten. Bread has a density of about 0.25 g/ml, so 0.5 ml of bread contains 10 mg of gluten - i.e. a bread ball 1 cm in diameter. I think it would be unlikely to ingest this much from throwing bread out for the birds.  
    • trents
      Sciatica came to mind for me as well. You might want to get some imaging done on your C-spine.
×
×
  • Create New...