Please Help

[momandlovingit]

Recently we were told that our 5 year old daughter may have Celiac Disease, she was born with severe acid reflux disease that lasted for two years,and since then she has had severe 'tummy aches' and MANY bouts of diaherra daily.(has over 8 bowel movements a day) She has recently had a endoscopy and colonoscopy which the Doctor was optimistic with the results but has not ruled out Celiac or possible Chrons disease. My questions and concerns are as follows; she has ALWAYS been very small her first birthday she only weighed 18pounds, and up till turning 4 she has been very under weight was under 31pounds now all of a sudden she has gained 22 pounds between age 4 and just turned 5 in Feb. I know children go through a growth spurt but is this common? she loves to eat veggies and fruit even turns down candy for them! she hasen't met a food she doesn't like but it seems everything she eats she winds up in the bathroom right after always complaing of her tummy hurting. any help would be great she has just started seeing a specalist for children with digestive disorders but I would like to have all the information I can to be able to ask more direct questions. Thank you for your help. Her mom

[super-sally888]

Hi,

Welcome. You are at the right place. People here are very supportive and know heaps. Lots of parents of children here and they will give you excellent advice.

Seeing your daughter has already had testing (did they do blood tests as well), the best thing to do would be to start her on a gluten free (and initially dairy-free) diet to see what happens and if it helps. You may need to be patient, also if things don't improve dramatically or completely resolve, you may also need to look for other food intolerances (ie. my sister's kids are gluten, caesin and salicylate intolerant). They manage!

Keeping a food and symptom diary may help, so you can see if you can find a correlation between what she eats and her symptoms.

Keep asking questions and keep searching!

Best wishes

Sally

[momandlovingit]

Hi,

Welcome. You are at the right place. People here are very supportive and know heaps. Lots of parents of children here and they will give you excellent advice.

Seeing your daughter has already had testing (did they do blood tests as well), the best thing to do would be to start her on a gluten free (and initially dairy-free) diet to see what happens and if it helps. You may need to be patient, also if things don't improve dramatically or completely resolve, you may also need to look for other food intolerances (ie. my sister's kids are gluten, caesin and salicylate intolerant). They manage!

Keeping a food and symptom diary may help, so you can see if you can find a correlation between what she eats and her symptoms.

Keep asking questions and keep searching!

Best wishes

Sally

[momandlovingit]

Thank you for responding. I have really no idea how to use this site. Any info. would be great. I can't seem to figure out how to read my responses it takes a while to get to them. momandlovingit

[Guest lorlyn]

Just wanted to say hey and welcome to the site. My 10 year old daughter was diagnosed in Nov-06 and just had her first follow up testing last week. All of her test levels have returned back to normal levels even though she eat McDonald fries 2-3 times a week The doc said she is doing great on her new diet. She is getting tired of eating fruit most of the time but she is a pretty picky eater. My husband and I have noticed that her body is starting to feel out. I can tell she feels so much better physically but still has some hard times with "brain fog-memory retention" as her grades have been falling for the past six months. I hate to be to hard on her about her grades considering all she has to go thru missing all of her favorite foods. Hopefully your daughter will do great once on the diet. Good luck and hope everything goes well for ya.