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My Tests? Help?


adrews

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adrews Newbie

So I have had these symptoms pretty much my whole life. I was born vomitting and my parents took me to doctors and they just said I had gas. I had blood tests for celiac in 2005 FINALLY...had an endoscopy on 1993 and they just said I had moderate fold thickening with associated spasm in the bulb and first portions of the duodenum and superficial erosive process of the mucosa. Whatever that means but no one cared. My celiac blood test says negative but my C-Reactive Protein is consistantly high whenever tested and the Platelets were listed as High according to standard ref. range. A lot of my numbers are the high end of the range and my nutritionist says it means I have a low tolerance for gluten but my GP says no big deal. Is there one particular line I should look for on my lap profile? Can you test negative for the disease but have a low tolerance instead? I am really tired of being sick all the time. Any help or advice would be great...I am concerned for my children also as they are both small for their age and have had a host of problems. Has anyone heard of acne problems from this?

THANK YOU FOR ANY ADVICE!!! I did order a saliva test and waiting for the results that is supposed to show my tolerance for gluten, soy, egg and dairy.

**I should add this my CELIAC DISEASE AB PROFILE:

Antigliadin Abs, IgA 14

Antigliadin Abs, IgG 18

t-Transglutaminase (tTG) IgA 11

Reticulin IgA Ab Negative

Reticulin IgG Ab Negative

I have all kinds of things on here also from Hepatic Function Panel, Basic Metabolic Panel, CBC, Sedimentation Rate_Westergren of 19 etc etc


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So I have had these symptoms pretty much my whole life. I was born vomitting and my parents took me to doctors and they just said I had gas. I had blood tests for celiac in 2005 FINALLY...had an endoscopy on 1993 and they just said I had moderate fold thickening with associated spasm in the bulb and first portions of the duodenum and superficial erosive process of the mucosa. Whatever that means but no one cared. My celiac blood test says negative but my C-Reactive Protein is consistantly high whenever tested and the Platelets were listed as High according to standard ref. range. A lot of my numbers are the high end of the range and my nutritionist says it means I have a low tolerance for gluten but my GP says no big deal. Is there one particular line I should look for on my lap profile? Can you test negative for the disease but have a low tolerance instead? I am really tired of being sick all the time. Any help or advice would be great...I am concerned for my children also as they are both small for their age and have had a host of problems. Has anyone heard of acne problems from this?

THANK YOU FOR ANY ADVICE!!! I did order a saliva test and waiting for the results that is supposed to show my tolerance for gluten, soy, egg and dairy.

**I should add this my CELIAC DISEASE AB PROFILE:

Antigliadin Abs, IgA 14

Antigliadin Abs, IgG 18

t-Transglutaminase (tTG) IgA 11

Reticulin IgA Ab Negative

Reticulin IgG Ab Negative

I have all kinds of things on here also from Hepatic Function Panel, Basic Metabolic Panel, CBC, Sedimentation Rate_Westergren of 19 etc etc

Every lab has different reference ranges for what is considered normal. Could you please post these, so we can see what your values mean? Because otherwise we really can't tell you anything from looking at those results.

adrews Newbie

THANKS!

Antigliadin Abs, IgA is 14 and their range is 0-19

Antigliadin Abs, IgG is 18 and their range is 0-19

t-Transglutaminase (iTG)IgA is 11 and their raings is 0-19

For the Reticulin IgA and IgG it just says Negative and Neg<1:20

I think I have figured no Oats for sure cuz I remember for two months prior to this I was eating Oatmeal almost every morning. I had Oatmeal cookies a few weeks ago and was in bed with a migraine 3 out of the 5 days. Of course as you can tell I love oatmeal. Had pizza the night before last and was in bed with a migraine yesterday and it still hurts.

THANKS FOR YOUR HELP!!!!!!!!!!!!!!

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      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
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