Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


It's Just Stress...or Fibromyalgia...or...

Rate this topic

Recommended Posts

These are the conversations I have had with my doctor for a couple of years now. The most recent is fibromyalgia because the blood tests came back negative for rheumatoid arthritis. After talking with a co-worker and disclosing that I am definitely allergic to malt, she said I should look into gluten being the problem. I then did some research and ended up having 90% of the symptoms listed.

Why has nobody ever brought this up as a possibility before? I have been scuttled from one specialist to the next with all of them telling me there is definitely something wrong but they don't know what because all of the tests have come back perfectly normal.

I have been gluten-free (as best as I can tell) for 4.5 days and I am already less tired and I haven't had a headache in 2 days (a record).

In a strange way I was hoping I wouldn't feel better because the diet is so difficult, so I'm having mixed feelings about feeling better.

I guess I'll just keep going on the diet and see how things progress. It's nice to see I'm not entirely crazy though (or alone).

Share this post

Link to post
Share on other sites

I could of wrote that post, I am so confused and just trying to process this all. I am sure someone here can help you and point you in the right direction.

I wish you luck, and I too have been feeling better and having more energy as well.

Share this post

Link to post
Share on other sites

Why has it not been brought up before? Because doctors are clueless about anything that is not relieved by a prescription. I suffered for almost all my life. I told doctors as a child that eating made me feel bad but only got tested for diabetes, over and over and over and over. Once I was almost dead doctors finally thought to test for celiac but because I am one of the 'lucky' 30% who don't show up positive in blood tests the diet was never even mentioned.

The diet is difficult at first but it is doable, especially once you start to feel the results. For me the diet was a miracle and after I got through the first couple of weeks of withdrawl the benefits I have gotten have given me a new life. Too bad it took 40 + years to diagnose me, my life and my childrens would have been so different if I had been diagnosed promptly.

Share this post

Link to post
Share on other sites

What I found, and I think others have as well, is that when you go off the gluten free diet you feel so lousy with the return of symptoms , that you can't wait to go back to gluten free. There are so many great gluten free products out there, it is just a matter of sourcing the stores in your area that carry the products and figuring out which products you like. As well, I look at it as a reason to eat healthier. It gives you the opportunity to eat more whole foods (fresh cuts of meat, fresh fruit and veggies and I love rice and sweet potatoes). I know when you are dealing with all the fatigue, the thought of even starting to figure out what to cook let alone starting into cooking meals from scratch is overwhelming, but as you start to feel better try to set aside some time to experiment with your meals. Good luck!!

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
  • Blog Entries

  • ×
    • Create New...