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Imodium (sp?)

Guest jhmom

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Hi all :)

I just wanted to know if any of you use Imodium on a daily basis in addition to the gluten-free diet to help control your diarrhea? If so, does it help at all?

The reason I ask is because despite being gluten-free since Sept 2003 I continue to struggle with diarrhea every morning and sudden BM urges (cannot hold it at all).

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Celiac.com Sponsor (A8):

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Hi Stacie,

Boy, have I been down that road....

Immodium, Lomotil (which I found out had gluten in it), everything under the sun the dr. gave me didn't work. I had permanent diarrhea for almost a decade! Sometimes 10 - 12 time a day. I also was not able to keep it in. I always had to stay close to the bathroom....

After years of this, my celiac dr. finally referred me to a professor at St. Michael's Hospital. He did a colonoscopy and sent several biopsies for testing. He suspected I had collagenous colitis, also known as microscopic colitis. Sure enough, the pathologist report said that is exactly what I had. If you google it, you will probably find what you read very familiar. The first treatment was a high dose of bismuth. 8 Pepto Bismol pills a day for eight weeks. That treatment apparently works for 35% of collagenous colitis patients. It didn't work for me. I am now on Budesonide and it has worked miracles for me. I almost took a picture of my first solid bm, I was so happy!!!

The next time you see your dr., perhaps ask him about collagenous colitis, it might be the reason your diarrhea is not going away....

Have a great day!



positive bloodwork, positive biopsy

Celiac, collagenous colitis, hypothyroidism

endometriosis (at age 20)

spinal stenosis (early 20's)

Biopsy August 2006 confirmed complete villous atrophy despite being gluten-free for years and bloodwork within range showing compliance with diet. Doctor has confirmed diagnosis of Refractory Celiac Sprue.

Endoscopy also showed numerous stomach ulcers, have started taking Losec.

Mother to Eileen 13 yrs

Rhiannon 8 yrs

Daniel & Connor 6 yr twin boys......

"Joyfulness keeps the heart and face young. A good laugh makes us better friends with ourselves and everybody around us."

Orison Swett Marden

Laughter is the shortest distance between two people.

-- Victor Borge

"An optimist laughs to forget. A pessimist forgets to laugh."

Tom Nansbury

"Doctor to patient: I have good news and bad news. The good news is that you are not a hypochondriac."


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