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Peter - Quick Note On Endoscopy Pathology


Klauren

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Klauren Apprentice

Thanks so much for your help! I hope you are doing well - you are dealing with a lot and you seem so on top of it - an inspiration!

As a follow-up to your post to me on healing - I posted to you that my GI said that the pathology report doesn't tell you how "bad' your disease is, it just confirms your blood work - which in my case was pretty conclusive without the endoscopy. You responded that your GI was able to tell you that you had a particularly severe case. Well, of course, YOU were right and my (former) doctor was not. I have now read my own pathology report which specifically states that I have "severe villius blunting" if all cases were the same, why would the pathology say severe? In addition the GI doctor has been truly nasty and unsympathetic all along; I am not going back to him! Every day I am learning how much more Celiac patients know than the doctors who are treating them!

Now that I am "listening" to my body more, I think I am having problems with uncooked veggies and lactose. I am hoping I am able to deal with these foods after some healing!

I am grateful!

Best,

Kim


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psawyer Proficient

Kim, I am glad that you found my info helpful.

Take care.

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      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
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