What Should I Do? Plz Help

[HelpinOhio]

Im a 18 year old male. Ive been tested for Celiac Disease twice and supposedly tested negative both times.

This is the problem though:

I ate bread rarely for over a year prior to the 1st test, gluten yes, but like pure wheat products like bread not really. I had heard I might have Celiac Disease before this, so before I took the 1st test, I had been 95% off of all gluten for 3 months prior. I hadnt changed my diet before the test.

The 2nd test I had only started eating 4 pieces of bread 2 weeks prior to the test. This was about 3 months after the 1st test and my eating patterns had not changed. Except for 2 weeks before that, I had still been 95% gluten free.

I have many symptoms of Celiac Disease and my mom has it. Its a very long and sad story with all of my symptoms I could go on for hours here and I dont have near enough energy to say all of it. Ive said it all way too many times before and I just cant do it right now. Im not sure if I want to go through the pain and wait of getting tested again, or if I should just try to go completely gluten free without that and see how I feel. The longest I have gone completely gluten free was about 3 days. At the end of those 3 days I was already feeling better and could concentrate much better. I could already tell that I was improving. Too bad we didnt have the right food for me to keep going.

This is my question to all of you that are listening:

Should I eat a lot of gluten for over a month and then get tested again?

or should I try to go gluten free and see how I feel?

[flourgirl]

Hi Ohio! In the first place you don't mention what tests you've had. Blood tests can give a false negative. Even Endoscopy with biopsies may not get affected areas. If you have to have the proof positive that you have Celiac...then you'd want the tests.

If you don't need the medical proof.....there is nothing stopping you from going on the diet and improving your health. You say you mom has it.....has Celiac? That gives a much higher chance of having yourself. There is a lot of info. here, in books, on line to help you with the diet and how to maintain it. Gluten is hidden in so many places, you'll want to be vigilant in checking ingredients in everything.

Good luck to you, and hope you feel better soon.

[HelpinOhio]

Thx for replying. I got blood tests done 2 separate times. Im not sure how I did on them, but the doctors said they showed I didnt have Celiac Disease. I was skeptical about that validity of that because I made a mistake in my eating patterns. I didnt know much about the tests until after the 2nd time. Now I hear your supposed to eat a good amount of gluten a day for over a month prior to the test, and I had not.

Yes my mom has Celiac Disease, and I have several other relatives who may have some degree of it. Like I said, its a long story. Im 18 now and realize I may have had it for the past 7 years which caused all of my problems and nobody could figure out what it was. Ive looked in books and on the internet researching what I might have for over the past 16 months, and I believe I finally know what it is, Celiac Disease. Ive had so many precious moments and years of my childhood taken from me, and all I want to do is feel better. I was forced to do home schooling, because I was too sick to go to school anymore. I now only have 4 credits left to graduate, but I cant concentrate enough to finish them plus I have no energy.

Im contemplating which I want to do. I think I would rather have solid proof so everybody will believe me and it will be settled. In that case from today I should start eating a good amount of gluten everyday and get tested again in 6 weeks or so. Im pretty sure it should come back positive after that. Then I should get a nutritionist, and it will all be settled. Or I could just go gluten free now with no tests and see how I feel. I just hate to waste any more time. I hope I feel better very soon also.