Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Where Are We Getting Gluttoned From?

songstressc

Contamination from Bins   

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

songstressc Apprentice
songstressc
Posted

My husband and i went gluten free end of Nov 08 Dec 1 ish - Today we were back at the doc for our latest test results. Initially my gliadin (SIgA) count was 12 when diagnosed his was 15 BUT TODAY our counts were higher 23 and 27! Shouldn't it being going down down down! We are wondering what we could be eating? I am frustated don't know what we are missing? We try to eat organic as much as the wallet lets us and as healthy as possible. We shop for fresh fruit and veggees regularly, eat soy or coconut yogurt - Eat, beans, lentils, rice etc. more vegetarian vegan than not but we do eat eggs. I buy flours labelled gluten free. Wondering Feels like I start to feel so much better and then wham again!

Some items we are wondering if we are making a mistake eating::::::::::

I have bought Jolly time popcorn this does not say anything about gluten free it says contains egg, soy and milk ingredients NOT wheat so??

To Bin or Not to Bin - Heck I started a Poll for those who only want to give quick feedback. To Grind or Not to Grind?????

We have always bought from bins and even when we were first diagnosed and fatigue was improving for both of us ; spoke to Whole Foods where we shop for certain items and they have shared their process with regards to bins; THEY DO NOT change bins ingredients they move the whole bin if they need it somewhere else ; they do remove bins. They even mark on some bins may contain wheat or do for example the flours, oatmeal etc. They have scoops for particular bins attached Not many say may contain wheat that are not wheat based.

We buy fresh ground peanuts we grind at whole foods on our home baked bread It is accross from any other bins and all products on same side are sealed.

I have bought things from the bins now that I think of it but never from the 'may contain wheat' bins.

What about Jams that don't say gluten free like Trader Joe's or WF fruit preserves lower sugar with fruit pectin -does not say may contain wheat etc. -should be okay then I think????

Anyone buy their Manchego Cheese - It is the only cheese we buy as I have a problem with dairy The cheese is a sheep cheese from Spain and yummy this lactose girl can eat it!

I know blue cheese can have wheat so..

We also buy the Only Egg whiles from Trader Joe's

I am going to contact Whole Foods and ask them again to check on the bins that we have used and the peanuts we grind.

For those out there just joining - I am still new at this and even though I get tired of the immense work etc. I am glad to find out the cause of my childhood illnesses. I read a post and say hey that's me too! I l was always throwing up as a kid/ not growing/ getting sick colds, infections and dental cavaties but the biggest obvious change for me is my nails; they were growing amazingly strong and long; I had to cut them! Now they have been breaking growing; Seems like it takes so long to get over a glutinous experience!

THIS SITE IS AMAZING I really don't know how I'd cope so well without the support of the generous people willing to share a thought or two. Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Jmartes71's topic in Dermatitis Herpetiformis
      2

      Skin issues

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr. https://my.clevelandclinic.org/health/diseases/morgellons-disease
    2. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    3. trents
      - trents replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    4. nancydrewandtheceliacclue
      - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      Hello Russ! Thank you so much for your reply. I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal...
    5. Russ H
      - Russ H replied to nancydrewandtheceliacclue's topic in Introduce Yourself / Share Stuff
      4

      Celiac flare years after diagnosis

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,046
    • Most Online (within 30 mins)
      10,442
    Urquhart
    Newest Member
    Urquhart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Skin issues

      By Aretaeus Cappadocia · Posted

      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      Celiac flare years after diagnosis

      By trents · Posted

      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Celiac flare years after diagnosis

      By nancydrewandtheceliacclue · Posted

      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      Celiac flare years after diagnosis

      By Russ H · Posted

      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
×
×
  • Create New...